| Author |
Message |
Mel_g
| | Posted on Friday, August 25, 2006 - 10:18 am: | |
I am so happy you got one of many miracles this week! I hope to hear the good news taht you all got to spend the weekend together! I will be keeping my fingers crossed for you and hope for the best, I hope your family can get to spend the weekend together at home!!! |
Fairydolph
| | Posted on Friday, August 25, 2006 - 03:13 pm: | |
She looks so thrilled to be home and what a great pic of her with her kitty. Pets are such an important part of the healing process during illness.
Take care, and enjoy being together at home. |
Tarheel_fan
| | Posted on Friday, August 25, 2006 - 03:54 pm: | |
PRAYING THAT THE LORD WILL PROVIDE THE WAY FOR YOU TO TAKE JANA HOME FOR THE WEEKEND! HER FAITH AND STRONG WILL HAVE TRULY INSPIRED ME! LOVE AND BEST WISHES, JENNIFER |
R_n_b
| | Posted on Friday, August 25, 2006 - 02:10 pm: | |
She is really one beautiful and strong little girl. You are all very brave. I also keep thinking about how hard it must be for you having your oldest daughter away at this time. Is the college far? I have a son who is a sophomore at college, and I know how he would feel leaving this situation, so if you ever want to discuss how the college situation is going, let me know--Robin PS That is one beautiful cat, too.....! |
Tami_and_jason
| | Posted on Friday, August 25, 2006 - 04:58 pm: | |
I was just checking in and I saw the picture of Jana with her cat...I am so glad she got to come home...it is amazing what a little bit of home can do! Saying prayers that you get to stay home over the weekend! |
Cookiesc
| | Posted on Friday, August 25, 2006 - 03:42 pm: | |
Bumping the message back to the top with prayers, love and the following poem that a friend e-mailed to me today:
Slow Dance
This is a poem written by a teenager with cancer.
She wants to see how many people get her poem.
It is quite the poem. Please pass it on.
[Image Removed] [Image Removed]
[Image Removed]
This poem was written by a terminally ill young girl in a New York Hospital.
It was sent by a medical doctor - Make sure to read what is in the closing statement AFTER THE POEM.
SLOW DANCE
Have you ever watched kids
On a merry-go-round?
Or listened to the rain
Slapping on the ground?
Ever followed a butterfly's erratic flight?
Or gazed at the sun into the fading night?
You better slow down.
Don't dance so fast.
Time is short.
The music won't last.
Do you run through each day
On the fly?
When you ask How are you?
Do you hear the reply?
When the day is done
Do you lie in your bed
With the next hundred chores
Running through your head?
You'd better slow down
Don't dance so fast.
Time is short.
The music won't last.
Ever told your child,
We'll do it tomorrow?
And in your haste,
Not seen his sorrow?
Ever lost touch,
Let a good friendship die
Cause you never had time
To call and say,"Hi"
You'd better slow down.
Don't dance so fast.
Time is short.
The music won't last.
When you run so fast to get somewhere
You miss half the fun of getting there.
When you worry and hurry through your day,
It is like an unopened gift....
Thrown away.
Life is not a race.
Do take it slower
Hear the music
Before the song is over.
--------------------
FORWARDED E-MAILS ARE TRACKED TO OBTAIN THE TOTAL COUNT.
Dear All:
PLEASE pass this mail on to everyone you know - even to those you don't know! |
Rls
| | Posted on Friday, August 25, 2006 - 03:05 pm: | |
Here we are back at home for the weekend!  Her numbers were great and we were so happy to head back home. The college daughter is heading home right now and the middle daughter is packing to be here for the weekend. We are going to relax, do normal family stuff, and enjoy our time together. Monday brings a return to the hospital to begin the next 21 day cycle. I am hoping we can keep her healthy and fever free with no problems over the weekend. We have no idea when this will happen again, so we are enjoying it while we can. We are ecstatic! |
Angieh
| | Posted on Friday, August 25, 2006 - 12:28 pm: | |
I cannot stop the tears of anger that this can happen and then the tears of joy at Jana's strength, endurance, courage, attitude, beauty, etc... I have kept you all in my prayers during your long and difficult journey but didn't think to check for your posts of Jana's progress until today! God DOES answer prayers. You have an amazing family and I wish I were closer so that I could visit. You are all an inspiration and we continue to pray for you, Jana, your family, your friends who are assisting and especially the medical staff. God Bless!!! |
Tommywommy
| | Posted on Friday, August 25, 2006 - 06:27 pm: | |
Rls..You tell your lovely Jana that she has so many friends that are cheering her on..Show her these posts..We are praying for her in Tennesse.
Jana..We "ALL" love you and you are going to be fine. |
Hapycapr
| | Posted on Friday, August 25, 2006 - 06:50 pm: | |
We are new to the mb and I wanted you to know that I will mention your beautiful little girl to our church's prayer circle. So let her know that Chippewa Falls,WI will be thinking and praying for Jana's quick recovery. |
Miakev
| | Posted on Friday, August 25, 2006 - 06:57 pm: | |
Jana, you and Miss Maddie are both Gorgeous, You with the beautiful smile and her with those huge (looks to be gold) eyes! I am so happy that the two of you can be together for the weekend, along with the rest of your family. Hang in there! Be Strong! Keep the Faith! We are all of us on this board there with you.. you are in our Hearts and Thoughts!
Back to the top we go!!!! |
Backdoc2b
| | Posted on Friday, August 25, 2006 - 07:45 pm: | |
Yeah Jana!! I'm so happy for you. Enjoy your stay at home and give Maddie and extra squeeze for me! I am a cat lover myself I know how important those friends are. Have a wonderful weekend at home and enjoy yourself! |
Mschlik
| | Posted on Friday, August 25, 2006 - 10:58 pm: | |
Enjoy your family time together. It's amazing what the love and faith of our family, friends & animals can do for us!! Keep that blood count up Jana, we're prayin for you!!
Thanks so much for sharing the pictures! What a beautiful girl... Inside & Out!!!
Hang in there!!! Keep the Faith... I check daily for updates, so PLEASE keep us posted.
Michelle & Jim |
Fairydolph
| | Posted on Friday, August 25, 2006 - 10:36 pm: | |
That is wonderful news RLS. Have a wonderful wknd bonding together for family time!!!!!!! : ) |
Katjim
| | Posted on Friday, August 25, 2006 - 10:33 pm: | |
I'm so glad that you've been able to spend some time at home with your family. Have fun. Enjoy Maddie! I bet she's really purring! You are in my heart and prayers! Your courage is so inspiring. |
Scottdenise
| | Posted on Saturday, August 26, 2006 - 11:55 am: | |
Just a saying I wanted to share;
If God brings you to it, He will bring you through it.
Happy moments, praise God.
Difficult moments, seek God.
Quite moments, worship God.
Painful moments, trust God.
Every moment, thank God.
Hope your family is having a wonderful weekend! |
Illinoiscouple
| | Posted on Saturday, August 26, 2006 - 05:11 pm: | |
I am so happy that you all will get to be together...that will be therapy for you all. Keep the love and faith! We send our prayers! Angie from Illinois! |
Eileen11
| | Posted on Sunday, August 27, 2006 - 01:25 am: | |
Have a wonderful weekend with your whole family together!We're all thinking of you.
Eileen |
1georgia
| | Posted on Sunday, August 27, 2006 - 10:37 am: | |
Rls:
I have been off the message board for several months,visited today and have read your messages from begining to present. Your journey chronicled here has resulted in tears and heartfelt prayers for you, Jana and the rest of your family. As a mother, I cannot imagine your pain--or your courage. I will pray for you all each day. May God grant you peace and Jana continuing improvement in her battle. Please continue to keep us informed. |
Rls
| | Posted on Sunday, August 27, 2006 - 06:46 pm: | |
We have had a wonderful weekend of togetherness. Our friends and family have been so respectful of our desire to be a family and spend some quiet time with just the 5 of us. Even when we weren't talking and we were just together--it was great to have everyone under the same roof.
Today is bittersweet as we sent the college daughter back and have the middle daughter packed and ready to return to our friend's house. We are so very grateful for the opportunity to have this weekend but it is very difficult to know what lies ahead and dread the morning when we return and move back in.
Monday and Tuesday are medicines to prepare her body for chemo and then Wednesday is big time chemo meds followed by a week or so of chemo, spinal injections, and more. This cycle will be a repeat of the previous 21 day treatment plan, but the staff has warned us of the accumulative effect of the treatments; so we are prepared for this time to be somewhat more difficult. However, Jana has proven us wrong before--so who knows what can happen!
Please keep Jana, us, and the hospital staff in your thoughts and prayers as we embark on our next phase of treatment. |
Texasdee
| | Posted on Sunday, August 27, 2006 - 11:19 pm: | |
My family is praying extra hard for all of your family as well as the doctors and all the staff. We are so grateful that you had a great wknd together. Love and many prayers to you guys!!! |
Backdoc2b
| | Posted on Sunday, August 27, 2006 - 10:57 pm: | |
Rls~ I'm so glad that you had a wonderful weekend together as a family. That is really important. I hope that Jana proves all of the doctors wrong and does well with this round of chemo. Hopefully her trip home will keep her and your spirits up. Keep us posted. |
Eileen11
| | Posted on Tuesday, August 29, 2006 - 02:02 am: | |
Keep us posted this week. We know you'll need some shoulders to cry upon and we're all here for you.
Eileen |
Fairydolph
| | Posted on Tuesday, August 29, 2006 - 12:11 am: | |
Glad you had a wonderful wknd. How is Jana doing with getting ready for the week ahead? And how are *you* doing also? |
Rls
| | Posted on Tuesday, August 29, 2006 - 04:04 pm: | |
Hello Everyone,
It brightens my day--I read and re-read your messages. Truly, it touches me beyond words.
We came back on Monday to the hospital. We had a very hard time coming back--my heart ached as Jana rocked Maddie and cried as we were getting ready to leave in the morning. But, now we are back and as hard as it is to return--we know we must. That really is the hard part--she feels good. We know that's a good thing--but it makes it so difficult to understand and rationalize--we are not "fixing anything" that hurts. We are actually making her feel bad through the treatments.
So, we are back in hospital mode. We moved all of her "homey" things back in and the walls are once again decorated with photos and comfortable things that make the room seem more warm and friendly. We were able to get the same room back--but it is a cleaner version of the one we left! (They stripped and waxed and no hairballs anywhere!)
We all were very sad yesterday after our return. But, we made it a movie day and watched some funny movies while she received her medicine over the required 4-5 hours. Today, we decorated the room, got showered and dressings changed to prepare for the upcoming days. She slept a lot, recovering from the medicines yesterday.
Tomorrow is big time chemo--4 different kinds and all day monitoring and scary stuff. We are ready for whatever comes. We know the mountain might be getting steeper, but we know there are lots of people to help push us and/or carry us with their support, prayers, and encouragement. |
Chloe
| | Posted on Tuesday, August 29, 2006 - 08:49 pm: | |
Hang in there. We know the next few days are going to be very difficult for all of you. We're all thinking about you, and I am praying for you. |
Fairydolph
| | Posted on Tuesday, August 29, 2006 - 09:02 pm: | |
As always, will be thinking of all of you. Take care. Jana and all of you are troopers, and as difficult as it is, you WILL get through this.
Take care, and keep us posted. Give Jana lots of hugs from her Couple's family please. |
Smilemon
| | Posted on Tuesday, August 29, 2006 - 09:18 pm: | |
Please know that our prayers and thoughts are with Jana and your family daily. Thank you for updating us regularly, I look everyday to see how Jana is doing. I am sure even though Maddie is not there with her now, she is praying for her too. Take Care! |
Jamaicax2
| | Posted on Wednesday, August 30, 2006 - 05:58 am: | |
Rls, Jana,
Keep on keepin' on!
Thanks for posting the pictures of Jana.
You have a very stong family. Inspirational.
Keeping you in my thoughts. |
Christyw
| | Posted on Wednesday, August 30, 2006 - 01:53 am: | |
Jana is such a little trouper.
I am praying for her to get strong and for her body to take the treatment needed to make her well. Not sure if you know this but purple light is what Reiki masters use to heal people. So, when you are laying next to her you can just visualize purple light all around her body.
I have been told it is pretty powerful. And if she visualizes it running through her body, it calms the body too. When I am sick I pray and visualize it. It helps.
Thinking about your whole family in this time. |
Cathyjoe
| | Posted on Wednesday, August 30, 2006 - 06:48 am: | |
It sounds like the next couple of days are going to be rough. We will continue to keep you and Jana in our thoughts and prayers.
And thanks for the updates. I check daily to see how she is doing. |
Cmweinman
| | Posted on Wednesday, August 30, 2006 - 07:51 am: | |
I continue to pray for Jana everyday. She is so lucky to have such a wonderful family help her with this difficult journey. I have said it before, but prayer is an amazing, miraculous thing and Jana definately has an abundance of it! Keep your faith-it will lead you over that mountain you are facing. God bless Jana! |
Siouxj
| | Posted on Wednesday, August 30, 2006 - 09:13 am: | |
I have read the many posts from all and relish in the fact that no matter what our spiritual beliefs are, that we are all sending our healing thoughts, prayers, and words of encouragement. I truly believe that by everyone sending so much positive energy and love that we can tip the scales in Jana's favor. All great miracles can be manifested by all. You just have to believe it and live it. Make it yours. So be it! |
Illinoiscouple
| | Posted on Wednesday, August 30, 2006 - 01:12 pm: | |
RIs.....I am so glad that Janas trip home was a good one. That will help you get through this next round of treatment. If she is feeling good that is a good start to this round.... Once this is all over with that Mountain that is so steep now will one day just look like a small hill in life. And each and every year Jana is done that mountain will get smaller and smaller! My sisters is 6 years smaller!!! Also my brother in law just finished treatment several months ago ...so I feel for you through all this! Keep the faith and taking it one day at a time!!!! May god bless you and your family!Angie from Illinois! |
Tarheel_fan
| | Posted on Wednesday, August 30, 2006 - 07:48 pm: | |
SO GLAD YOU ALL WERE ABLE TO HAVE A FAMILY WEEKEND TOGETHER!! THAT IS SO IMPORTANT AT THIS TIME! PRAYING THAT THIS WEEK WILL BE MUCH EASIER THAN EXPECTED! AND AGAIN, IF JANA IS IN NEED OF SOME ENCOURAGMENT I'VE GOT THE GIRLS HERE READY TO MAKE AND MAIL HER CARDS! IF YOU HAD RATHER SEND ME THE ADDRESS YOU CAN EMAIL ME AT mrskcjfly@earthlink.net!!
LOVE AND BLESSINGS, JENNIFER |
Rls
| | Posted on Thursday, August 31, 2006 - 01:44 pm: | |
Hello MB friends,
Jana did her really big day of chemo yesterday and did well. It is such a long process but besides some stomach cramps and fatigue, she coped well. We had to return to the OR this morning for another spinal injection--her least favorite thing. But, God sent us more angels who honored our request to give her the medicine that we know will help prevent her extreme nausea after anesthetic.
As soon as we returned to the room, they started her chemo meds for today (2 of them) but after a long nap--she proved the power of her stomach and positive thinking and chowed down 2 cheeseburgers and fries from the McDonalds in the cafeteria. Go Jana!
She is just facing whatever comes her way. She got a cute greeting card today. It says on the front, "Every germ has an angel that watches over it and whispers..." Inside says, "Die, little germ, die!" That made her giggle. We are just praying for each drop of medicine that flows in to hunt and destroy every cancer cell--die, you cancer cells, die! (And keep Jana healthy and strong in the meantime)
Our college daughter is coming home again for part of the holiday weekend. She misses Jana a bunch (and visa-versa), so she and the middle daughter will be here for part of the day on Saturday. It will be nice to see them again.
You know I appreciate your encouragement, support, and prayers. You're awesome! |
Jeanie
| | Posted on Thursday, August 31, 2006 - 02:32 pm: | |
Rls, you are an amazing person drawing from great reserves of strength and faith. Yours is an attitude that can move mountains!
I know that your daughter will fully recover from this illness!!! The positive energy here is overwhelming! I feel we are all witnessing a miracle through your messages of hope. What little our words and actions seem to do, but what power our prayers can unleash!
May God Bless and keep your family strong!
Geaux Jana! |
Mel_g
| | Posted on Thursday, August 31, 2006 - 02:35 pm: | |
I am so happy to hear Jana is doing so well!
We are off to CSA tomorrow, but you will be in my thoughts while we are there! We usually spend a sunset sitting on the beach talking about our plans and dreams for the next year, I will make sure to include Jana's health in our prayers this year!!
I hope you have a nice reunion with your daugthers this weekend! |
Lisaroy
| | Posted on Thursday, August 31, 2006 - 04:33 pm: | |
It is your whole family that is awesome, especially Jana. It is wonderful that the girls will be together for the afternoon as it is amazing what spending time with friends and family can do for everyone. Keep thinking positive about those nasty germs.
Keeping good thoughts for you all. |
Tommywommy
| | Posted on Thursday, August 31, 2006 - 07:40 pm: | |
Our prayers are still going out to Jana..We are very proud of you little lady..God bless you and your family.
From
Your Couples family worldwide. |
Eileen11
| | Posted on Friday, September 01, 2006 - 01:06 am: | |
I'm so relieved to hear that Jana is doing so well during this hell week! Is you husband able to be with you this week? I sure hope so because then you can draw support from each other.
We continue and will continue to pray daily for Jana's full recovery, which I'm certain will happen. We'll all have our favorite Couples cocktail that day to celebrate!
Have a great weekend with your whole family.
Eileen |
Travibabiesgirl
| | Posted on Friday, September 01, 2006 - 07:37 am: | |
Glad to hear that Jana is taking the meds well and the hospital staff are doing everything in their power to help her be as comfortable as possible. It is amazing to see Gods work being done and I feel blessed to be able to watch each miracle unfold. Jana has brought so many people of different faiths and even some without faith together to wish her well, pray, and keep positive energy flowing. That in itself is amazing. Continued prayers and good energy sent to you and your family. |
Las
| | Posted on Friday, September 01, 2006 - 10:13 am: | |
Rls,
This is long but I just wanted to share this you, so I apologize in advance.
As I prayed last night and lifted up Jana's name, I could not help but be filled with joy. Think about it, God led you to this board for one thing not realizing that you were going to need this board for another. Although human suffering goes hand in hand with life, many do not have the support that your little Jana has and will continue to receive. God being provident put you in place at the right time for you, Jana, and family. What a special little girl and what a very special parent for knowing where to go and what to do. I said in another post that this board is a ministry whether we recognize it or not. And it is where we come for our healing. You were bold enough to not just come but be opened and share. Not to get preachy on you, but I know that you have heard "you have not because you ask not". You, standing for your baby, put aside all apprehension and came to this MB for help and look at all the support. Imagine if you didn't?? Imagine if you went against God's leading? I know my words mean nothing for in the grand scheme of life, I am a stranger to you, but Rls, speaking as a parent, I am so proud of you!! I know that in the midst of this, it is hard to see good, but for those of us who have children, not only do we unite with you, but you have made us hug our children a little harder and a little longer. I wish I could say something that could take all this away from you and any parent going through, but I can pray which I will continue to do.
Peace... |
Fairydolph
| | Posted on Friday, September 01, 2006 - 01:19 pm: | |
RLS, THANK YOU once again for taking the time out of your stressful days to keep us posted as often as you do.
Thinking of all of you and continuing to send positive thoughts and healing your way for ALL of you. |
Rls
| | Posted on Friday, September 01, 2006 - 01:14 pm: | |
Hello! Today has been a bleak day for Jana--just so sick and hurting everywhere. They wanted her to take her oral medicines and she was so sick we knew they wouldn't stay down even after several IV stomach medicines. So, they put her on a monitor and gave her some morphine which prompted sleeping and broke the cycle of nausea.
We woke her a while ago to quickly eat a bit of donut and take her oral medicines. Since she went back to sleep right away, we think we got past that hurdle for this morning. Since there is more chemo today, they are planning on Ativan and more Morphine later to keep her painfree and sleeping the day away.
She is peacefully sleeping now, and is doing better. Pray for rest and healing. Many thanks, my friends. |
Allenandsharon
| | Posted on Friday, September 01, 2006 - 06:33 pm: | |
Rls, my family is continuing to send Love and Strength to you and your family. Stay strong |
Vickyj
| | Posted on Friday, September 01, 2006 - 07:36 pm: | |
Make sure you are resting when you can also. Thoughts and prayers to you and your family. |
Scottdenise
| | Posted on Friday, September 01, 2006 - 09:04 pm: | |
May Jana rest well, be pain free and continue to heal. May God's love comfort her and be ever so near her and your family! |
Db4usa
| | Posted on Friday, September 01, 2006 - 10:06 pm: | |
You got it, RLS. Bless her heart. The prayers are going up. |
Eileen11
| | Posted on Saturday, September 02, 2006 - 12:54 am: | |
Oh that poor baby! Thank God the week is just about over. Prayers are with you all. |
Tarheel_fan
| | Posted on Saturday, September 02, 2006 - 10:01 am: | |
PRAYING FOR REST FOR YOU ALL AND HEALING FOR JANA!!!!!!!!!! |
Fairydolph
| | Posted on Saturday, September 02, 2006 - 03:39 pm: | |
Lost of rest and healing energy Jana's way!!!!! She's such a trooper..........you're ENTIRE family is apparantly full of troopers!
I won't have internet access for a few days due to us moving, but I will check in as soon as it's hooked back up in the new place to see how Jana is doing. In the meantime, I hope you know that mine and my families thoughts are with you all! |
Trish
| | Posted on Saturday, September 02, 2006 - 05:15 pm: | |
I've been following this thread from the beginning and just can't put into words how I feel for you. As a mother, I know that you would trade places with Jana in a heartbeat, and it has to be so hard for you. I hope that all of the support on the message board will help you and your family in some way, and that everything will work out for you and your family. Keep yourself strong for her, and I hope she will be better soon. She's lucky to have a great mother like you! |
Christyw
| | Posted on Sunday, September 03, 2006 - 02:56 pm: | |
We will continue to pray for her.
We leave for CSA on Thurs. We will be thinking of Jana while we are there.
Take care of yourself too.
Can you watch a funny movie? That always helps me when I am sad. |
Rls
| | Posted on Sunday, September 03, 2006 - 05:08 pm: | |
Hello,
Another sleepy day for Jana. They are continuing the morphine and ativan for pain, nausea, and overall discomfort. Sleeping is good--rest, peace, healing, and no vomiting. The staff are so responsive to her needs and work really hard to make her comfortable.
Her college sister came home yesterday and brought our middle daughter along to the hospital. Jana did not feel like visiting, but my husband and I spent time with them. My husband has still not gone back to work. He tried to go back to work last week, but only worked one day and then we got to come home for a couple of days so he came, picked us up, and helped get things done at home. This week was too rough and too scary to be here by myself...also if she gets a craving for food, we need laundry done, or just need a break--we need to be able to trade off. He is still sleeping at the Ronald McDonald house and I am sleeping in the room. I have finally stopped getting up in the night to help her unless she really needs me. She has learned to call the nurse to get her to the bathroom, etc. I'm usually aware of what has happened during the night, but I know I can't do it all. I am trying to follow the newborn mom philosophy of sleeping when she does during the day...sometimes it works!
Las--Thank you for what you said. It makes me feel good to know that my sharing of this experience may help others to appreciate things a little more. I like to think I am giving something back to you when you have unselfishly given us your prayers and support. When I wrote my very first post asking for your prayers, it was at 2:00 am on a very terrifying, sleepless night during those first days after diagnosis. I was in the midst of e-mailing friends and family to tell them the news and suddenly, I knew that I had to log on to Couples. I don't recall how I found the Couples website originally probably a year ago now. But, I know that I found this MB for a reason--we needed all of you to support us during this time. And I know that my husband and I were meant to go to CSA because we needed our time there to bond and prepare us for this. I have never found a more supportive, positive group of people come together on one MB--all from different worlds and experiences. It surely renews my faith in the goodness and kindness of people. Thank you. |
1georgia
| | Posted on Sunday, September 03, 2006 - 03:28 pm: | |
I pray for you all each and every morning. I hope these painful, bleak days are soon past. Draw strength from the many Couples friends that keep your family in our hearts. Thank you for keeping us informed. |
Sophiaxoxo
| | Posted on Sunday, September 03, 2006 - 06:40 pm: | |
Dear Rls,
With God's infinite mercy and love to comfort all of you, Jana will bounce back and be ever stronger for having gone through this. She's very fortunate to have a family as wonderful as all of you to guide her through and keep her spirits up. Please keep the faith. On those days when it may seem very stressful, ask God to take over and try and get some much needed rest, all of you. God, the Angels, and all the Saints are watching over Jana now. I pray that you all continue to remain strong and positive. This hurdle too shall pass.
With love and lots of prayers from my family to yours, May God Bless You and Keep You. |
Allenandsharon
| | Posted on Monday, September 04, 2006 - 09:59 am: | |
Rls, just know that we are here praying for you and your family. Prayers, Love and Strength to you. |
Texasdee
| | Posted on Tuesday, September 05, 2006 - 12:03 am: | |
Rls, Lots of prayers from Texas!!!! I am glad you are trying to pace yourself!! Stay well, we are praying for all of you!! |
Eileen11
| | Posted on Tuesday, September 05, 2006 - 03:07 am: | |
Thank you for your updates. Jana is a part of our lives now and we look each day to see how she's doing. Prayers are coming each and every day from all over the country! Your emails are sent to many prayer groups so Jana is known by name by thousands of people. Her recovery will be so celebrated! |
Rls
| | Posted on Tuesday, September 05, 2006 - 11:41 am: | |
Hello all,
I think we are on the upswing of the cycle...I hope. Jana had to have another spinal injection this morning which we all have come to dislike. But, it is the last one for a couple of weeks so that's good! They had to continue giving her pain medicine during the night, but it seems the overall body ache has lessened today.
Last night while Jana was "under the influence of morphine", I helped her get to the bathroom. As I got her tucked back into bed, she mumbled in her hazy voice, "Mom, You and I make a good team". That made me smile!
Her blood count is spiraling down as expected and we will see what the week brings. They have not talked about going home after this round--I think it is too soon to hope for that. I know they will do another evaluation to measure her progress after this round. I feel confident already in the outcome of that.
Thanks for your continued thoughts and prayers. |
Eileen11
| | Posted on Wednesday, September 06, 2006 - 01:51 am: | |
Sounds like your little trooper is truly a little hero! How are Mom and Dad holding up? |
Illinoiscouple
| | Posted on Wednesday, September 06, 2006 - 01:55 pm: | |
RIs ...I would have to say Jana is right. You and your family make a great team. Keep the faith and we are praying for Jana each and everyday. You know with all the hate in the world and all the bad things that happen....somehow people that have never even met each other come together as a group to support and give hope and share their feelings. I think in todays world that is a pretty GREAT thing and to all of you on here I think you are all Great people! Angie from Illinois! |
Jessbess
| | Posted on Wednesday, September 06, 2006 - 04:31 pm: | |
I will certainly keep your family in my prayers. I hope that you can find some kind of support group for parents and siblings who are going through this also. So many times people put all thier energy into the person that is sick that they set themselves up to be sick. Take care of yourself, especially when cold and flu season comes around or you won't be able to be with your daughter when she needs you. |
Tarheel_fan
| | Posted on Thursday, September 07, 2006 - 08:05 am: | |
HOPE TODAY BRINGS SMILES AND RELIEF FROM THE PAIN AND NAUSEA!! PRAYING FOR YOU ALL DAILY!!
LOVE, JENNIFER |
Rrrrrrrrrr
| | Posted on Thursday, September 07, 2006 - 09:01 am: | |
Rls....
I feel your pain. My Grandma raised me and we had a bond like none other, I took care of her while she was fighting Cancer. It made me grow up very quickly, humbled me towards others and taught me to be thankful for what time we have with those we love.
My grandma looked at me one night and said "It's not right for a granddaughter to do the things you're doing for me". "A Grandma for the Granddaughter, but not the other way around". I told her...."It's Ok....there's no where else I'd be but with you".
It takes power, courage and strength for both the family and Jana....more power to you!
My Grandma lost her fight.....
Keep strong and the sun will shine! |
Cmweinman
| | Posted on Thursday, September 07, 2006 - 10:25 am: | |
Keep on keeping the faith! God bless all of you-we will continue to keep Jana-and of course her family- in out prayers every day! |
Miakev
| | Posted on Thursday, September 07, 2006 - 12:50 pm: | |
Rls
Just checking in to see how things are going.
Angie from Illinois is right, you are all Great People. Stay Strong, we are ALL Praying for you and yours!
mia from Minnesota |
Rls
| | Posted on Thursday, September 07, 2006 - 03:51 pm: | |
**Heavy sigh**
The last few days have not produced the upswing as I expected...more pain, more pain medicine, more tears. Jana is just in a rough stretch right now physically and emotionally--frustrated, in pain, discouraged, etc. etc.
They gave her blood yesterday hoping to perk her up a bit and have done a lot of lab tests to see if there is an infection waiting to develop but so far, the tests have been negative. She is continuing to try to eat which is so great. She has been expressing her frustrations which is really good for her. Unfortunately, the frustration can't always be met with solutions which is really hard for me. Don't we always want to fix things for our kids?? 
Keep praying. The staff is incredibly responsive to her needs and are working hard with her and us to manage the pain as best we can. We just need to stay strong--brighter days are ahead. Thanks for the encouragement, thoughts, and/or prayers. |
Scottdenise
| | Posted on Thursday, September 07, 2006 - 10:39 pm: | |
Still praying for you and yours -- always -- stay strong |
Backdoc2b
| | Posted on Thursday, September 07, 2006 - 11:11 pm: | |
Rls~
Sorry to hear that Jana has not been doing as well as expected. However, things always get worse before they get better. I hope that she and you get the strength to get through this tough week. You are both so brave. It's a good thing that she is expressing her feelings and frusterations. May be not to gain a solution, but to get it of her chest. Be strong and just BE there for her. That's what she needs more than anything. Stay strong together.
Continued prayers from Iowa. |
Texasdee
| | Posted on Friday, September 08, 2006 - 12:28 am: | |
Hi..As always we are praying for Jana. Does she like country music? My daughter is a country singer who is praying for Jana and I thought you might want to let her hear some of her songs. You do not have to buy it, just Google her name{sunny sweeney} and there are several free venues. Sunny has a love for kids and when Jana is better, she'll have to come to a concert as a special guest. Love and prayers from Texas |
Eileen11
| | Posted on Friday, September 08, 2006 - 01:41 am: | |
Is she at the point where some little gifts, cards, notes postcards, etc, will help? We don't want her frustrated and discouraged and maybe some little surprises from the Couples board will help pick up her spirits and give her something "different" to look forward to.
Let us know, OK?
Eileen |
Illinoiscouple
| | Posted on Friday, September 08, 2006 - 07:32 am: | |
RIs.....I know it is so hard right now...Just try to keep the faith. As a mom I know that we Always want to fix things and the love you are giving her and being strong for her is fixing it! There is no better healing then a parents love! Even though it is rough .....try to be strong...and it is Ok...if you have to take a minute to break down. Ours prayers are with you..Angie from Illinois! |
Cmweinman
| | Posted on Friday, September 08, 2006 - 07:55 am: | |
Rls-so sorry to hear that times are tough right now. I am sure good days are not far off. What a blessing to have a hospital you are so confident in. Stay strong and keep looking to the future where she won't be in any pain and she is cancer free. Know she is in our prayers! |
Crabracers
| | Posted on Friday, September 08, 2006 - 02:20 pm: | |
Rls: We know only to well that what you said about "wanting to fix our kids". That's what parents do. And we know we can't. We have to let them fall down andskin their knees, take crap from cruel kids at school, nurse them through all kinds of junk. With our daughter Sydney, who is now almost 34, we still want to "fix" her. She is moderately retardad, with an IQ of less than 60. And she has a seizure disorder. She functions at the level of a 7-9 year old person. She will never marry. We will never have grandchildren. She struggles every day to "behave" in an appropriate manner.
All we can do for her, and all the children, is to love them without question. Hopefully, they will take their spills and eventually learn the lessons that life has to offer them.
Stay strong togdther. Go out for a night. Feel no guilt if you go to a movie, or dinner, or just sit alone together. Jana knows you love her. This is the greatest gift we can give. |
Allenandsharon
| | Posted on Friday, September 08, 2006 - 03:31 pm: | |
RLS - more prayers, more strength, more love all coming to you and yours 2x. Stay strong and hold on and don't forget to take a minute for yourself. |
Rls
| | Posted on Friday, September 08, 2006 - 07:04 pm: | |
Thanks for the encouragement. Last night was really difficult. She has developed lesions (like canker sores) in her mouth, deep in her throat, and in her stomach--a side effect of chemo. They are so painful and her back aches from the spinal injections. Today, they moved Jana to a pain pump which gives her a steady dose of morphine plus allows her to boost the dose with a push of the button. She is convinced that it is not helping, but she is resting more comfortably. She has a glaze in her eyes and that's hard to see as a parent, and I have to help her to the bathroom; but it is good to see her resting.
Your encouraging thoughts and prayers mean so much to me during these long hours. Thank you. |
Smilemon
| | Posted on Saturday, September 09, 2006 - 10:03 am: | |
We continue to keep Jana and your family in our thoughts and prayers. Your strength truly is an inspiration for us all. Please remember to take care of yourself as well, so you can continue to have the strength for Jana. God Bless! |
Amyanderic
| | Posted on Saturday, September 09, 2006 - 10:40 pm: | |
Rls... We will continue to keep you all in our prayers. I can't even begin to imagine what you are going thru as a family. We have continued to pray for you daily, my kids are also praying and always asking me how Jana is doing. They are 12 and 13. I have shown them the pics you have posted and they ask if she is going to be ok, so I tell them that only God knows that and we just need to pray for her and her family. I pray for Jana to get well and for her family to have the strength to help her through all of this. God bless |
Knotandi
| | Posted on Saturday, September 09, 2006 - 04:37 pm: | |
Rls- I work in the medical field, and see some really sick people sometimes. I am always intrigued that sometimes the sickest ones seem the most positive, and "happy". After some conversations with a few, I think that positive thinking and the incredible medicine of laughter makes a huge difference. Please don't forget to laugh with Jana, like a really doubled over stomach aching laugh. It makes me smile just to think of "our" lil trooper Jana laughing like that. I pray for you not just for strength, but also for joy. Andi in TN |
Rls
| | Posted on Sunday, September 10, 2006 - 09:15 pm: | |
The weekend has been really, really rough. They have increased Jana's pain pump dose several times and have tried different medicines in combination to bring her pain relief. Her body will simply not rest or be at peace. It is in constant motion which is exhausting for her and exhausting for us because she is loopy and she doesn't know what she wants, but she wants something. The nights have been so long and she literally needs something every few minutes. She dozes for short amounts of time.
Today, she had a full-blown anxiety attack because of the pain, frustration, medicine effects, etc. and the nurse had to help calm her and put on oxygen and it was scary for all. However, the Dr. adjusted the medicine one more time (thank you, kind nurse) and mercifully, she slept for a few hours.
She is alert this evening and still in some pain, but it is more bearable. My husband is being her sleeping buddy tonight so I can get a full night's rest at the Ronald McDonald house. This is the first night for this but I know there have been too many nights of interrupted sleep for me to function well.
Thank you for your encouragment, suggestions, positive thoughts, and/or prayers. I am simply overwhelmed and humbled at the generosity of people.
Andi-Funny you should say that about laughing because until this last week, humor has been so typical of Jana. She has a very dry sense of humor and her quick remarks and positive attitude have amused everyone she has interacted with. Tonight, after she was able to rest for a time--she was starting to smile and joke about a few things and I think my Jana is nearly back from the depths of pain. |
Rae_dave
| | Posted on Monday, September 11, 2006 - 01:50 pm: | |
God's tender mercies be with you all. I heard a country song today called something like "If you're going through hell keep on going so the devil doesn't know you're there." and a verse talking about angels to reach out to you. I know you have alot of angels in your lives and they will continue to pull for you. May Jana feel better soon and continue the healing process. |
Scottdenise
| | Posted on Monday, September 11, 2006 - 06:31 pm: | |
God Bless you and your family. I know it's hard and there will be days more difficult than others and then out of the it blue will just be down right great. Do try to find humor -andi- is right - it has a healing power. I do in my personal relationship with God beleive he has a great sense of humor and enjoys a good one every now and then. A good old belly laugh releases stress and makes you still feel real. You guys can and will do this and be successful, never give up hope - tell Jana our love surrounds her |
Illinoiscouple
| | Posted on Monday, September 11, 2006 - 03:36 pm: | |
RIs...glad that you took a night to rest and get a full nights sleep. You need all the strength to get you and Jana through this. Our thoughts ...prayers and love go out to you. Keep the faith and taking it day by day. Angie in Illinois! |
Angieh
| | Posted on Tuesday, September 12, 2006 - 11:23 am: | |
Rls, I keep looking for your updates and progress reports. When I read of Jana's struggles, I cry. When I read of Jana's awsome attitude and courage, I cry. And most of all, I keep praying. You have an amazing child and I ask God to bless you all, comfort you and hold you in the palm of his hands. I wish we could all be there with you. |
Mzambo
| | Posted on Tuesday, September 12, 2006 - 03:43 pm: | |
Rls,
My heart goes out to you and your precious Jana. My father battled Leukemia for 4-1/2 years, and he fought a very good fight considering they gave him 12-18 months. His type of Leukemia was very rare.
I must tell you this.........They offered him radical chemo giving him a 50/50 chance of surviving it considering his age, the fact he was also a diabetic etc. I did NOT want him to have it. He decided a chance was better than none, and wanted the chemo.. I was soooooooo scared, my dad was my soul mate in so many ways!!!!
It was a chemo that he had to be inpatient for, in a room that was sterile etc. 3 days of the chemo, then 6 wks of hell!!!!!!! Everything that could go wrong did!!!!! He ended up with heart failure, infections, etc. then started bleeding internally because his platelets were so low, and they did not think they would be able to stop it because they could not find where he was bleeding from after numerous tests.........He was in Critical care for weeks, we thought we had lost him a couple times... It go so bad, that I was spending the night with him, and he had lost control of his bowels, and could no longer get to the bathroom, I was trying to help him into the shower one night after an accident, and he was soooooo embarrased and said "all modesty is gone" I cried, he cried, it was horrible...........
Long story short, he remembered very little from that time, if that is any comfort, and that HORRIBLE chemo, and 6 weeks of hell bought him 3 more years of life that the doctors never thought he would have.......
While this was my father, and not my daughter, I KNOW some of the pain you are feeling.....I know the horror you are living, but DO NOT GIVE UP!!!!!!!!!!!! Try to keep yourself strong for Jana............
Something people out there can do is go to your local Red Cross and donate blood. Blood donors are very difficult to come by, and patients like Jana NEED blood. Every pint of blood you give can save up to 3 lives...... They seperate it into red cells, plasma, and platelets. Since my dad passed away, one thing I continue to do in his honor is host Blood Drives every year at my work.........
STAY STRONG RLS and DO NOT GIVE UP HOPE!!!!!!!!!!
Much Love and Prayers,
Marie |
Kristiandtino
| | Posted on Tuesday, September 12, 2006 - 02:49 pm: | |
I checked the message board religiously before we left for our trip. Now that I'm back this is the only post I check on to hear how Jana is doing. I pray for her all of the time. Keep letting us know how she's doing and keep the pics coming it's good to put a face with a name.
Kristi |
Jerseygirl032
| | Posted on Wednesday, September 13, 2006 - 07:42 am: | |
Rls,
Please know that my family constantly has Jana and your family in our prayers.
I was somehow on the wrong board before, and thought you hadn't posted in almost 2 weeks. I'm not sure what happened. I may have been on the wrong thread. Anyway, I was glad to see your updates. We are praying for God to give you lots of strength, hope, faith, and healing.
Love,
Sandra |
Nharris4
| | Posted on Wednesday, September 13, 2006 - 08:17 am: | |
Rls, please know that you and your precious family are in my thoughts and prayers. There aren't a lot of words I can offer to make things better...only time and continuing miracles can do that. As a parent, my soul aches for what you are going through. As a cancer survivor, I will tell you there is hope. God bless you and all those angels both here and unseen who watch over Jana. I'm sending a hug for you all. Take care of each other and celebrate everything. It's so important to stay positive. This to shall pass...that was my motto when I was fighting my battle. *HUG* ~Nikki |
Miakev
| | Posted on Wednesday, September 13, 2006 - 10:29 am: | |
Rls
As I read thru this posting to catch up, I am in tears. You are so strong, Jana is also. Please continue to stay STRONG, We are all with you, sending our strength and continued prayers for all of you. Better days are gonna get there for you, I just feel it. Keep the faith, You will get thru this.
mia |
Vickyj
| | Posted on Wednesday, September 13, 2006 - 04:49 pm: | |
Continued thoughts and prayers for you and your family. |
Melanie
| | Posted on Wednesday, September 13, 2006 - 04:41 pm: | |
Stay strong Jana - thinkin about u here in Southern California kiddo! |
Jerseygirl032
| | Posted on Wednesday, September 13, 2006 - 04:40 pm: | |
Ahhh, and remember this.
All the times, when you look back and see only ONE set of footprints....
It was then that He CARRIED you.
And He's carrying you, Jana, and your entire family - right now! |
Tarheel_fan
| | Posted on Wednesday, September 13, 2006 - 05:10 pm: | |
RLS AND JANA....PLEASE STAY STRONG, YOU ARE ALL IN OUR THOUGHTS AND PRAYERS SOOOO MUCH! SORRY THINGS HAVE BEEN SO BAD WITH THE PAIN!! I CANNOT IMAGINE! YOU ARE ONE GREAT MOTHER AND SHE IS A GREAT DAUGHTER!! GET SOME REST AND TAKE CARE OF YOURSELF SO YOU CAN TAKE CARE OF JANA!!!!! LOVE AND PRAYERS!! JENNIFER
PS PLEASE LET ME KNOW IF I CAN DO ANTYHING!!!!! ANY REQUESTS??? |
Rls
| | Posted on Wednesday, September 13, 2006 - 06:17 pm: | |
Hello my friends,
I think we are on the upswing for this round! The blood count has recovered and Jana is perkier. Her mouth and throat sores are still not feeling totally great and her appetite has not returned, but I know relief is in sight.
Her heart rate has been irregular...ugh...so she had an echocardiogram today to rule out any problems. It could be medicine or chemo related so the oncologist will consult with a cardiologist as a precaution.
They are saying maybe, maybe home for the weekend. That seemed impossible just yesterday, but we are hopeful today. We have to get her weaned off the pain pump, keep her blood count up, and keep the fevers gone.
If we are fortunate enough to get home on Friday for Jana to see her cat, we will return Monday for the next round. The next round starts off intense and will last 2-3 weeks again. The good news from Jana's perspective is that the next round does not include spinal injections. She would rather be throwing up than having anesthetic and doing the spinal injections.
So, that's the news. Thanks for the encouragement. I think it will be extremely difficult to come back Monday knowing the next round is going to make her so sick so quickly again. This has been very hard. I really just try to take it one day at a time. I know this is the only way to our goal which is CURE!! |
Scottdenise
| | Posted on Thursday, September 14, 2006 - 11:37 pm: | |
Prayers are for Jana's strength and continued healing and another family reunion! |
Nharris4
| | Posted on Friday, September 15, 2006 - 09:36 am: | |
We'll keep you in our prayers for a nice weekend at home and continued improvement in Jana's health! |
Nharris4
| | Posted on Friday, September 15, 2006 - 09:36 am: | |
We'll keep you in our prayers for a nice weekend at home and continued improvement in Jana's health! |
Miakev
| | Posted on Friday, September 15, 2006 - 12:21 pm: | |
Rls, We are all thinking CURE with you! Hope you get to go home for the weekend, a little relaxing out of the hospital environment can only make things better. Plus Maddie probably needs to see Jana as much as Jana needs to see Maddie. you are all in my thoughts and prayers daily.
mia |
Scubagee
| | Posted on Friday, September 15, 2006 - 09:22 pm: | |
This was too far down the board. Needed a bump.
We are still thinking of Jana.
Best to you all! |
Travibabiesgirl
| | Posted on Saturday, September 16, 2006 - 05:41 am: | |
I am so glad to hear Jana is feeling better again. There are so many ups and downs with this battle. With each post of her struggle I cry tears of sadness;and each victory Jana makes bring me tears of joy. I truely hope that you all made it home for the weekend.On Monday just remember that each round she completes gets her closer to her goal. I can't even imagine how hard this has been on you and your family. continued prayers for you, your family and Jana. |
Rls
| | Posted on Saturday, September 16, 2006 - 12:28 pm: | |
Happy Weekend, Everyone!
We are home for the weekend! Jana is happy to be home, but not feeling as good as the last time so she is a little frustrated. However, she is resting and watching TV with Maddie. She is having a lot of back pain which could be due to no morphine at home or due to a different bed, etc. I called the Dr. this morning about the pain and hopefully the medicine and ice will help for now. Her mouth and throat sores are better and she is eating some now.
Her college sister is not able to be home this weekend, but that's OK because Jana doesn't feel much like company. Her other sister is playing in a tennis tournament today so my husband is there with her and she will be home tonight and tomorrow.
Being home is great, really it is--so I don't mean to complain. But, it is a lot of work too...pack, unpack, do laundry, pack again, get food, run errands, give medicine and monitor eating and drinking, etc. etc. Of course, in the back of my mind I can't help but think of going back on Monday-the countdown clock continues to tick in my mind...
Your encouragement helps remind me that things will be OK! |
Miakev
| | Posted on Saturday, September 16, 2006 - 04:52 pm: | |
Rls
After reading this last post from you, this song sprang to mind. "Three Little Birds" Bob Marley
I know you know this song....You can't go to Jamaica without having it in you mind forever!
Don't Worry.. About a Thing..Cause Every Little Thing Gonna Be All Right!!!! Thats what I am thinking and praying for you right now. as the song plays in the background.. I would upload it, but I don't think it would work..So have a great rest of the weekend, and when Monday comes, all will work out. remember Don't Worry about a thing...... |
Cathyjoe
| | Posted on Saturday, September 16, 2006 - 05:17 pm: | |
Glad you guys made it home for the weekend and Jana is with Maddie. Pets can certainly lift your spirits and make you feel better. Hope Jana has an easier time with the pain.
Continued good wishes to you and your family.
Thanks for taking the time to update. We are keeping Jana in our thoughts and prayers. |
Jerseygirl032
| | Posted on Saturday, September 16, 2006 - 07:22 pm: | |
RLS - I think that after all your family has been through, is going through, and is still going to go through - a little complaining does you some good and I believe you have the RIGHT!!!
You NEED to be able to vent a little frustration, so that you will have the energy to keep coping with your situation.
Obviously, there are ALOT of us here, that have never met you face to face - but love and care alot about you.
So go ahead and vent hon - you need to and you DESERVE to.
We're here to support you and we're ready to listen.
Love and God Bless You,
Sandra |
Smilemon
| | Posted on Saturday, September 16, 2006 - 08:50 pm: | |
So glad Jana got to go home for the weekend. I am sure Maddie is glad to have her home as well. Make the most of your time at Home and try not to think ahead too much. Thoughts and Prayers continue to come your way! |
Texasdee
| | Posted on Sunday, September 17, 2006 - 02:46 am: | |
Thoughts and prayers from Texas are coming your way. We are all praying for your every need. I went to my daughter's show tonight in our old home town and was so happy to have several people ask how Jana was. They had heard about her from Sunny and just plain old word of mouth.
When I read this message board, I am amazed and thankful at how many people love your Jana!! Thanks for sharing her with all of us. |
Eileen11
| | Posted on Monday, September 18, 2006 - 01:02 am: | |
We're so happy that Jana was able to come home for the weekend, and YOU, also! Jana is now known by so many people and she has touched all our hearts. |
Mobob
| | Posted on Monday, September 18, 2006 - 10:09 am: | |
Glad to hear Jana was home for the weekend. I find myself thinking of her often and when I get to work on Monday the first thing I do is look for your post. This is a tough year for all of you. Scream, cry, throw things and LAUGH! You will get thru it! Keep the faith. We are all routing for you! |
Rls
| | Posted on Monday, September 18, 2006 - 01:46 pm: | |
Here we are back again for Round 4. It was somewhat of a relief to be back because she knows they can give her medicines here that can work quicker through the central line. She had so much back pain, nausea, and vomiting over the weekend so she didn't enjoy it as much as she had hoped. She did have a great time being lazy with Maddie.
The first chemo meds are hung right now. We moved back in the same room which is a great comfort to her. This room has a wall right beside the bed which holds her 30+ photos of family and friends which is very motivating to her. She is back with her same positive attitude and determination.
This week is predicted to be intense so we appreciate your continued support. Much love and appreciation back to you!
 |
Gregswife
| | Posted on Monday, September 18, 2006 - 02:55 pm: | |
I haven't been on the board in a little over a week. I'm reading updates with tears in my eyes! They keep switching from tears of joy to tears of sadness. Just because I haven't been on the board though, doesn't mean that one day has gone by that I haven't thought about Jana! She and your family are in my thoughts daily.
Hang in there, Mom...you are amazing! |
Tarheel_fan
| | Posted on Monday, September 18, 2006 - 05:13 pm: | |
PUSHING YOUR POST BACK TO THE TOP!
LOVE AND PRAYERS |
Trey
| | Posted on Tuesday, September 19, 2006 - 08:26 am: | |
Good luck this week and tell her she looks GREAT!!! |
Illinoiscouple
| | Posted on Tuesday, September 19, 2006 - 08:56 am: | |
RIs...I am glad Jana got some down time at home.!!! Our thoughts and prayers are with you as you start this next round. How much more does she have to go? Our thoughts and prayers are with you all. Angie from Illinois |
Miakev
| | Posted on Tuesday, September 19, 2006 - 10:20 am: | |
Maddie looks like she is Janas guardian angel, protecting her. Keep strong, you are an amazing family! Hugs and Prayers sent your way daily! |
Mel_g
| | Posted on Tuesday, September 19, 2006 - 12:42 pm: | |
What a great girl you have there! We can all learn a little from her positiveness, strength and determination! |
Razzldazzl
| | Posted on Tuesday, September 19, 2006 - 01:14 pm: | |
Dear Rls and Family. I haven't been on the MB for a while now and have nothing but admiration for Jana and your family while waging war w/this cancer. 'They say' strength comes in numbers... May messages of love and support provide you all w/some sense of comfort, knowing we are concerned and praying for Jana as she travels down this path and for your family as you are each others support 'system'. |
Cookiesc
| | Posted on Tuesday, September 19, 2006 - 02:19 pm: | |
THANK YOU for the pictures and updates! Jana remains in our prayers and thoughts. No way you can beat Jana's smile! |
Lisaroy
| | Posted on Tuesday, September 19, 2006 - 06:23 pm: | |
It is wonderful you were able to come home. She has the sweetest smile. Please keep the faith and positive thoughts. Thinking of you all. |
Lisaroy
| | Posted on Tuesday, September 19, 2006 - 06:26 pm: | |
It is wonderful you were able to come home. She has the sweetest smile. Please keep the faith and positive thoughts. Thinking of you all. |
Eileen11
| | Posted on Wednesday, September 20, 2006 - 01:56 am: | |
We're thinking of Jana, you and your family. I hope things are going well this week for Jana. I know it's going to be a tough week for all of you but please remember that you have so many people praying for Jana. |
Scottdenise
| | Posted on Tuesday, September 19, 2006 - 08:42 pm: | |
So glad time to hear time at home was good. Also, glad to hear you are back where things are familiar, I would think that would make it easier for her & you. We continue to pray for Jana and your family and appreciate your updates. They allow us to feel connected in some way and give us the feeling that we are somehow helping and play a positive role in her well being. I can't fathom what you are going through - so many wonderful people are here to help you, please allow us if we can -- much love to you & Jana! |
Rls
| | Posted on Tuesday, September 19, 2006 - 09:52 pm: | |
It has been a whirlwind of time since we arrived back at the hospital after our weekend home. They started Jana's heavy duty chemo within hours of arrival yesterday and she ate while she could. Good thing, too, because she made it until this afternoon before nausea and vomiting set in.
But, the fun part--yesterday, Jana was on TV! There is a fraternity and sorority at the local university that organized a benefit concert for Jana and the TV crew came to interview Jana. On the news, they called her, "The girl with a contagious smile". We thought that was appropriate.(I am posting once again our favorite "smile photo" so you can confirm their opinion!)
Then, the fraternity boys came and went down on their knees and lavaliered her as their official fraternity sweetheart. They presented her with a necklace with their letters on it. It was so amazing and oh so sweet--her face was priceless.
Tonight was the benefit concert and she stayed with grandparents while we went. These young, energetic college kids were simply unbelievable. They brought in a band, put together a slide show, made photos messages for Jana, and just were amazing to be with. The tears did flow tonight!
Sometimes in life, people get cynical--doubting good in people and the news so often focused on the negatives. Well, if only people could experience what we have experienced in the last 2 months they would never doubt the good in people again. All of you have proven that to me with your unselfish good wishes, encouragement, and prayers. Our friends, family, and community with their cards, messages, and prayers. And tonight, I looked out on these young adults and thought--the future is going to be OK! People are good and giving--never, never doubt that. ~Lisa
 |
Crabracers
| | Posted on Wednesday, September 20, 2006 - 07:46 am: | |
Rls: I have been reading the posts from the very start. I have cried often. I am so impressed with Jana's strength and the strength of her family. Today, I cried again as I read of the young people that came and did the benefit show for Jana. It is true that much of the daily news is filled with terrible tragedies and lots of negative information about the youth of our country. But what the news doesn't report is the courage and strength and goodness that is all around us. It is a shame that it takes such painful experiences to bring out the best in any of us. But it's there.
Continued hope and strength for you and Jana. "One life one love. Let's get together and be alright" |
Tarheel_fan
| | Posted on Wednesday, September 20, 2006 - 09:26 pm: | |
WHAT A BLESSING TO HAVE A GROUP OF YOUNG PEOPLE TAKE THE TIME TO DO SO MUCH FOR JANA...I AM CERTAIN THAT THEY MADE HER DAY!! (AND YOURS)THE WORLD IS GOING TO BE OK, WE JUST HAVE TO LOOK IN THE RIGHT PLACES AND STAY AWAY FROM THE MEDIA, MOST OF THE TIME....SO HAPPY TO HEAR THERE ARE SOME EXCITING THINGS GOING ON FOR YOU!! LOVE AND PRAYERS, JENNIFER J |
Rae_dave
| | Posted on Wednesday, September 20, 2006 - 01:18 pm: | |
Amen, amen to the hope filled sentiments posted here, for both the future of our young adults and for Jana's journey to health! Lisa, more prayers are sent up for strength and blessings beyond expectations for you all. |
Crazycanuks
| | Posted on Wednesday, September 20, 2006 - 02:03 pm: | |
Rls
I have been reading this thread since you first posted, but have not posted myself until now. Know that I have been praying for your daughter every night... I have not posted because I really don't know what to say, I can offer no words of comfort, no words of wisdom, just my faith in God and my prayers. I know how painful what you are going through must be... My mom lost her battle with cancer at the end of June, it was small cell lung cancer. I know it is not the same has having a child fighting this disease, but she was my best friend. I pray every night not only to God, but to my mother as well to watch over Jana. My mom was a teacher, needless to say, she loved kids.
I am sorry I have not said anything before now, but I couldn't find the right words, I still can't. But just know that my heart is with you and so are my prayers. And hey, if anyone up there has pull with the Big Guy, it will be my mom (she was very opinionated, stubborn, and perfect in my eyes). So I will continue to pray for Jana, and ask my mom to watch over her....
All the best, may God bless you and your family,
Leah |
Katjim
| | Posted on Wednesday, September 20, 2006 - 02:08 pm: | |
I've been keeping up with you and continue to be amazed at your strength and Jana's sweet spirit. The outpouring of love and concern from the MB is also reaffirming. I'm so sorry that you've had to travel this path, but you're sure handling it with much grace! Please know that your family is in my thoughts and prayers, and will continue. Thanks so much for taking time for updates.
Kathy |
Michelle__vern
| | Posted on Wednesday, September 20, 2006 - 06:49 pm: | |
Yes, Jana does have a contagious smile. She has made all of us on the MB smile as we read regular updates. Our prayers are with your family. |
Db4usa
| | Posted on Wednesday, September 20, 2006 - 07:04 pm: | |
That smile is contagious and beautiful and most of all sincere. What a girl.
I too have kept up with this thread, looking for news of Jana. I too have cried trying to imagine what she and you all must be going through. When this thread first started, my husband asked me why I was crying. I told him that I would tell him later because I couldn't even talk. I pray for you and Jana to continue to find strength and courage to fight this. I pray for knowledge and wisdom for her doctors and I pray for a full cure. I pray for God to wrap His loving arms around her (the whole family)and for her to feel His love. I pray that you can get good rest so that you can continue being the loving parent that you are.
I am so thankful that your family has found the love and support needed to get through times like these. Thank you so much for keeping a bunch of strangers updated on your little girl. We do so appreciate that.
June |
Rls
| | Posted on Thursday, September 21, 2006 - 06:17 pm: | |
Hello MB friends,
8 weeks since diagnosis...almost to the hour...that moment replays in my mind over and over--what people said, what we did, who we called, how I felt.
In some ways, I can't believe we are done with 8 weeks of treatment. In another way, the minimum amount of time for this protocal is 6 months, so optimistically, we could be 1/3 of the way done...wow.
This round for Jana is the "sick to her stomach" round. She is getting chemo meds almost 24 hours a day for 5 days this round so I can see why she is hanging her head in the basin so much. But, it's no fun! Her smell is greatly affected and she has a constant "icky/metallic" taste in her mouth.
After a discussion with staff, we decided sleep is the best option so they are trying to time out her medicines that settle her stomach and others that encourage sleep.
Thanks to all of you. I know some of you think that you might not say the right thing...but anything you say helps us know you are sending us love and support. It helps, really it does. |
R_n_b
| | Posted on Thursday, September 21, 2006 - 05:50 pm: | |
It always amazes me when a family has the strength to pull together and deal with something like this. But as you said, it brings out the good in people. What the local frats and sororities did for her is amazing. I don't post often, but you continue to be in my thoughts.
Robin |
Fairydolph
| | Posted on Thursday, September 21, 2006 - 08:12 pm: | |
RLS, sorry I haven't been around to post lately. I've been awfully sick with a cold, then flu, and now I have one MASSIVE sinus infection.
Glad to hear Jana is still being a trooper. But then I wonder by looking at her, could she be anything less? She is such a sweet and happy looking girl, even through being sick and undergoing "yucky" treatment. Thoughts and healing energy are being sent your way, and even though I haven't been here much lately, please still know that I and my family are still thinking of all of you.
Take care! |
Backdoc2b
| | Posted on Thursday, September 21, 2006 - 10:26 pm: | |
Rls~
Thank you for the updates on Jana. I read this thread everyday in hopes of hearing how you all are holding up. I think and pray for you often. I can't believe that it has been eight weeks already. Your family has shown amazing strength through this tough time. I have shed tears of sadness and happiness for your family. Stay strong. If you need a shoulder to cry or lean on, we'll be here for you. I'll keep "The girl with a contagious smile" in my thoughts and prayers. |
Eileen11
| | Posted on Friday, September 22, 2006 - 02:49 am: | |
She's an amazing child! We went through some alarming events with our third daughter, but nothing quite as serious as you're going through with Jana. Our prayers and thoughts are with you each and every day. I'm really glad that you were able to go to Couples before all this "crap happened" to renew your marrage.
All our love to Jana and to your family. |
Cjb0715
| | Posted on Friday, September 22, 2006 - 07:02 am: | |
Dear Rls and Jana:
I have a co-worker that was diagnosed with stomach cancer last year. He definitely went thru hell. After all his treatments and a very slow recovery, he returned to work. No one recognized him! We all tried to keep positive thoughts but it wasn't easy. And then, slowly, oh so slowly he started to look a little better, walk a bit faster, talked a little quicker and almost right before our eyes, he became the person from the previous year!!! He recently went in for his yearly exam and he has a clean bill of health!!!
I just wanted to let you and your family know, miracles happen all the time and with all our prayers and modern medicine Jana WILL recover. It may take some time, but we all know she's going to get better. There's something to be said for "the power of positive thinking".
I wanted to pass along some information from my co-worker. He had a similar bad taste in his mouth all the time for several months and he said the only thing that really helped were Jolly Ranchers candy. Maybe Jana could give it a try and see if it works for her too.
I don't know what part of the country you are located, but Jolly Ranchers are sold in the New England area. I hope you are able to find some and give it a try.
I would be very happy to send some if you can't find them. Please know that you're family is in my thoughts and prayers. I check the board daily to read your updates. One third of the way thru and by this time next year, Jana's hair will have grown back and she'll be back at school and having fun with her friends. And when she turns 18, she'll be planning her trip to Couples!!!!
God Bless,
cjb |
Meganfritz
| | Posted on Friday, September 22, 2006 - 08:36 am: | |
Continuing to send love and prayers every day... |
Cookiesc
| | Posted on Friday, September 22, 2006 - 10:00 am: | |
Rls -- it sounds like the fraternity may have been Sigma Chi's (the Sweetheart of Sigma Chi song is running through my head). I can still remember my wedding night when all of my brothers got down on their knees and sang the song to my new bride (25 years on 10/10/06 in CSA) and it brings a tear to my eyes. I am glad to hear that Jana is now and always will be a Sweetheart of Sigma Chi! |
Susiet
| | Posted on Friday, September 22, 2006 - 02:34 pm: | |
RLS: Everything you are going through brings back such memories of last summer for our son but good news--last week he had another brain MRI and the Dr's are amazed at his recovery--no new cancer cells and the hair is coming back in nicely (even though his father and all his uncles are bald ha ha). So, it is all going to be worth it for your little beauty! I am so glad that the University has recognized Jana and your family--boy that must have buoyed your spirits! I feel so bad that Jana is going through this but I am really trustful that she is going to come out on top!! Blessings & strength to all of you. Also, thanks so much for taking your precious time to let us all know how Jana is doing. We care. SusieT |
Miakev
| | Posted on Friday, September 22, 2006 - 04:40 pm: | |
This posting is toooo far down, Back up you go!
Continued good thoughts and many prayers. |
Christyw
| | Posted on Friday, September 22, 2006 - 08:22 pm: | |
We just got back from CSA and I thought about Jana a lot while we were there.
Still thinking about your family.
take care of yourselves. |
Rls
| | Posted on Saturday, September 23, 2006 - 08:51 pm: | |
Hi Everyone,
Today was the last day of the chemo for this round. Jana had a bad night last night--a reaction to the chemo that made her have chest pain and shortness of breath. She was OK, just scary and painful. She got sick to her stomach in the wee hours. But, we watched the last drip of chemo go in this morning and we know that we are another step ahead in our journey. She had a good day today and the sickness has stayed at bay, thanks to the help of good medicines. Now, the "blood count watch" begins which happens after chemo and we work through the recovery phase which will probably last a week or two.
Jana stayed with one of our friends this afternoon and early evening while my husband and I traveled 2 hours home to send our middle daughter off to her homecoming dance. Our college daughter was home too so she helped with things prior to our arrival. We were there when her date picked her up and we went over to another house to take pictures with her friends. Then we headed back to the hospital. Our college daughter was feeling pretty sad about being home by herself and had a hard time saying goodbye to us.
We just know that our girls are anxious to get things back to "normal"(obviously, we are too). But we know that Jana needs our positive energy and focus right now. We know it takes sacrifices and our other girls understand and know that too. We are trying to make time for the other girls when we can, but we just can't help feeling sentimental for the way things used to be...Some day we will look back on this time and be so grateful for the little things in life--things we used to take for granted before this beast called Cancer entered our lives. |
Vickyj
| | Posted on Sunday, September 24, 2006 - 12:36 pm: | |
Positive thoughts are coming your way.
Last year, my son's elementary recognized and did a fundraiser for Make-A-Wish. They have a student, our nieghbor, who at 18 mos was diagnosed with Lymphoma(?--I May be wrong about the specific type) She suffered for several years and then when she was 4, she was declared cancer free. She is now a happy healthy 2nd grader. The school through their fundraiser of contributions, a walk and penny wars raiser over $5000. There are only 600 students in the school. |
Peggyweggy
| | Posted on Sunday, September 24, 2006 - 01:37 pm: | |
Rls..Save these posts for "our" Jana and one day she can carry them to a Couples resort of her choice and read them on the beach.
We are praying daily for Jana.She means so much to all of her Couples MB family.We are so proud of her.
Thanks so much for keeping us updated on Jana. |
Susiet
| | Posted on Sunday, September 24, 2006 - 12:39 pm: | |
Gosh, you all have been through so much. Will this be it for the chemo now? I hope so! Things should start getting better now. We are all still praying and thinking about you guys! Hang in there! |
Backdoc2b
| | Posted on Sunday, September 24, 2006 - 05:56 pm: | |
Rls and Jana~
Hang in there! You're doing great. Just think, you're one step closer than you were yesterday. Praying for the LAST drip! |
Jerseygirl032
| | Posted on Sunday, September 24, 2006 - 09:59 pm: | |
What a beautiful thought, Peggyweggy!
When I read what you said about giving these posts to Jana when she turns 18 so she could read them on the beach when she gets to a Couples resort, I could close my eyes and imagine her sitting right there.
I can't wait for the day, when Jana and her family can look back on this time, and breathe a sigh of relief that it's over.
Please know, Rls, that your family is still in my thoughts, in my prayers, and in my heart...
Love,
Sandra |
Texasdee
| | Posted on Sunday, September 24, 2006 - 11:38 pm: | |
Hello Jana and Jana's family,
We had our 3 girl's and their families over today and we were talking about your family with your 3 girls. One of the kids brought me an engagement notice about a little girl I taught in school when we lived in another town. The child dropped out of school that yr because of cancer. As it was my last yr to teach I had never heard how things turned out. Well she looks great and is marrying an officer in the Army. She graduated from college and is a teacher. I remember how scared her mom was and how bleak it all seemed. I think I will send her flowers tomorrow!!! Have a great week and know how much and often we pray for all of you!! |
Eileen11
| | Posted on Monday, September 25, 2006 - 01:08 am: | |
I can certainly your girls ...and you...thinking of "life before C". It's normal and it's like a grieving process for the "old" normal life. Life will never be the same for any of you, but it will be better once Jana is better! Think of all the things all of you...all of US...take for granted and how you'll be the lucky ones that will never take a family dinner, a good video together, a teens messy room, for granted again. You'll love every second of it and will be so much the wiser than the rest of us. |
Rls
| | Posted on Monday, September 25, 2006 - 08:01 am: | |
Thinking of Jana grown up, sitting on the beach of a Couples resort makes me smile...thanks for that image.
She has had a good weekend. Not too sick, up and about, overall more energy. Her blood count is starting to drop which is to be expected. This week will be "recovery"--watch the blood count drop, take injections to raise the white count, get blood or platelets as needed, and recover from chemo. We will see whether going home for a few days is an option in a couple of weeks.
This was round 4 and we will start round 5 probably the second week of October. After round 5, we will have a complete evaluation of all original cancer sites: bone marrow, lymph nodes, etc. We just know it will show complete remission. When (not if) that happens, we will be looking at 4 maintenance rounds of 28 days each and then be done except for check ups. I like the optimistic plan, can you tell?
Keep praying--you all are amazing. I know I say it often, but if brightens my day and gives me such faith in the goodness of others to read and know of your support. ~Lisa |
Fairydolph
| | Posted on Monday, September 25, 2006 - 09:41 am: | |
Texasdee, what a wonderful story to share! I got goosebumps reading it.
Hoping Jana has a better week this week RLS, and the rest of your family also. |
Illinoiscouple
| | Posted on Monday, September 25, 2006 - 12:40 pm: | |
RIs ....Our thoughts and prayers are with you everyday from Illinois. Keep taking one day at a time and keep the faith! Tell Jana how much we are thinking of her! Thoughts and prayers..Angie from Illinois! |
Tarheel_fan
| | Posted on Monday, September 25, 2006 - 03:43 pm: | |
SOOO EXCITED TO HEAR FROM YOU AND HEAR THAT JANA HAS ANOTHER NOTCH IN HER BELT...1/3 DONE SOUNDS MIGHTY GOOD TO ME!! SORRY THAT YOUR OLDER GIRLS ARE HAVING A TOUGH TIME W/OUT MAMA AND DADDY BUT I'M SURE THEY UNDERSTAND ....YOU ARE WHERE YOU NEED TO BE...WE ALWAYS GO TO DIFFERENT CHILDREN AT DIFFERENT TIMES IN THEIR LIVES, THEY ALL NEED US MORE AT DIFFERENT TIMES!! HANG IN THERE!! THOUGHTS AND PRAYERS....JENNIFER |
Scottdenise
| | Posted on Monday, September 25, 2006 - 09:23 pm: | |
It's wonderful to hear things are truly going well, even though it's hard at times - light is at the end. We think of and pray for your sweet Jana everyday and you and your family. It's amazing that we met over the Couples message board because I speak to others as though I know you - people ask how is your friend and her daughter Jana -- I proudly say - they are doing well, hanging in there, things are and will continue to get better, Jana had a bad week-end but things are looking up - they will pull through -- I speak as though I know -- and I feel like I do, in my heart I do ---- I am proud to know you, trust and have faith all will be irie and how pround we will all be to celebrate the day we again have Jana healthy! |
Eileen11
| | Posted on Tuesday, September 26, 2006 - 02:20 am: | |
So happy to hear that Jana had a good weekend. Prayers will, of course, continue to come. |
Rls
| | Posted on Tuesday, September 26, 2006 - 11:51 am: | |
Well, we are moving right along here! If all goes as planned and there are no complications, they are expecting to release Jana within a day or two. Because her blood counts will most certainly drop, she may still have other complications within the next few days after release. Because we live 2 hours from here, we are opting to stay at a hotel nearby until the weekend before going home. That will allow us to return to the hospital for quick treatment if needed.
If we are at home and she runs a fever or has problems, we would have to go to our local ER (not a children's hospital) for immediate treatment and then be transported here. This is not appealing to us at all! So, we are going to a nearby hotel where they have a kitchen/living room/bedroom in the room so we feel at home, we can try to get her to eat, and we can still be nearby for treatment as needed.
If all goes well, we will head home this weekend for a whole week--we can't imagine! She will return October 9 for her next round. You can't imagine how excited we are! We are confident that she will actually feel well enough to enjoy her time at home this time. We are so grateful. |
Las
| | Posted on Tuesday, September 26, 2006 - 01:16 pm: | |
Maintenane rounds and then check ups...now that's good news!! We shall keep the prayers coming! |
Miakev
| | Posted on Tuesday, September 26, 2006 - 06:08 pm: | |
Lisa, We are so happy that things are going well.
Just being away from the hospital should make a huge difference. Then a whole week at home. How wonderfulllll.You all are in our thoughts and prayers all the time. Stay strong, this horrible C thing can and is being beaten!
mia |
Fairydolph
| | Posted on Tuesday, September 26, 2006 - 06:15 pm: | |
RLS, that's WONDERFUL news!!! |
Texasdee
| | Posted on Tuesday, September 26, 2006 - 09:07 pm: | |
Eileen is so correct!! I had actually forgotten we do not all really know each other personally!! When OUR Jana is well, we will have to try and have a Couples reunion to beat all other reunions!!!!We are so excited you get such a lengthy break!!!My hubby travels a lot with his job. We got to New orleans yesterday for a several month stay and we feel like home is where we are as a family!!! I wish the same for you guys!!! HAve a great week and tell Jana hi for us!!! Love, Dee |
Eileen11
| | Posted on Wednesday, September 27, 2006 - 02:15 am: | |
Oh My God...what GOOD NEWS! I am so happy for all of you. I can just imagine what happy thoughts are going through your minds. I think some of the same thoughts are going through our minds!
God is Good! |
Lisaroy
| | Posted on Wednesday, September 27, 2006 - 08:09 am: | |
Lisa, That is wonderful news for all of you. A whole week home will be the best medicine. We will continue with good positive thoughts and prayers. Lisa |
Travibabiesgirl
| | Posted on Wednesday, September 27, 2006 - 07:41 am: | |
YEAH oh I am so happy. Happy dance happy dance. So glad to hear The wonderful news. Another weekend spent away from the hospital and possiably a week. I am praying very hard for that week home for you all. That would be a much needed break for all of you. I am so glad to hear that things are going so well.
I also forget that we all don't know eachother. I catch myself wanting to offer to run errands or offer my help in any way then I think heck we may live thousands of miles apart. I will help the only way I can, Continued prayers happy thoughts and my encouragement goes out to you. |
Cathyjoe
| | Posted on Wednesday, September 27, 2006 - 11:53 am: | |
Great news. Good luck and hope you guys have a great week at home and hope everything goes well. |
Trish
| | Posted on Wednesday, September 27, 2006 - 03:22 pm: | |
Great news! Enjoy the time at home and be a "normal" family again. I hope the time you have together at home makes Jana feel better. We all know that home is where she probably wants to be after all the hospital stays. |
Vickyj
| | Posted on Wednesday, September 27, 2006 - 06:05 pm: | |
Congratulations. We will keep the positive thoughts and prayers coming your way! |
Smilemon
| | Posted on Wednesday, September 27, 2006 - 10:17 pm: | |
Oh that is such Good News! A week at home will be so nice for all of you. Give Jana a Hug for us. Daily thoughts and prayers continue to come your Way. |
Leoconnor
| | Posted on Thursday, September 28, 2006 - 07:05 am: | |
Bump for Jana!
Gosh that smile is awe-inspiring -- to be a kid and to still be able to smile in the middle of everything that most adults can't handle very well. God's light is in her eyes and smile.
You go Jana! |
Rls
| | Posted on Thursday, September 28, 2006 - 10:30 am: | |
Wow--we really are getting out of here for a week!! God is great!
Yesterday, Jana got 2 units of blood and today she is getting a unit of platelets while we are packing her room. We have to return to the hospital on Saturday for blood counts and since her white count is still dangerously low, we are staying in town at a hotel until Saturday or Sunday. Then, home for a whole week except maybe additional blood tests before returning October 9 for round 5.
We are so excited to get out of here and we have big plans like relaxing, sleeping, and spending time with our other daughters when we all will be together next weekend!! It will be like such a vacation for us. Thanks for your continued prayers and thoughts. We still have a ways to go, but this break will pump us up for the stretch ahead. |
Gregswife
| | Posted on Thursday, September 28, 2006 - 11:02 am: | |
WOOHOO!!!!! That's the best news ever! I'm so happy for your family. Time home will be so nice and rejuvenating. Go Jana Go! We're all pulling for you sweetie. Keep that smile bright |
Treez
| | Posted on Thursday, September 28, 2006 - 01:42 pm: | |
YEAH !!! GO JANA-GO JANA!!
Thank you for sharing your good news with us all. |
Illinoiscouple
| | Posted on Thursday, September 28, 2006 - 02:51 pm: | |
RIs...That is great news!!!!! Tell Jana to keep up the good fight and that she is doing great!!!! It will be so great for you all to have time home...we are praying Jana feels good to make your time home special. You all deserve it! Angie from Illinois |
Miakev
| | Posted on Friday, September 29, 2006 - 06:20 pm: | |
This post is far to hard to find. Back to the top you go...
Have a wonderfullll week at home.. We are all still with you. |
Rls
| | Posted on Saturday, September 30, 2006 - 07:17 pm: | |
We just brought Jana home after a couple of nights at a hotel near the hospital. The three of us had a nice time at the hotel--warm cookies and milk, playing cards, taking walks, etc. It was very reassuring to know we were close to the hospital. Jana feels well and her appetite is returning!
I went to a nearby shopping plaza while we were at the hotel--what a treat! Of course, I shopped for Jana. She got dressed in "real clothes" after I returned and was so excited to wear jeans and a cute denim jacket after 9 weeks of pajamas and comfy clothes.
Her blood test this morning still shows a pathetically low white count, so we are home--but keeping her isolated from others unless she is wearing her mask. But, we are home!! We have to return to the hospital on Monday for blood work again.
Jana is hoping by the end of the week that her blood is OK and she is feeling good. If so, she would love for us to take her along to retrieve her college sister for a weekend at home. Jana would love to see her sister's dorm and where she is hanging out these days. We'll have to wait and see how the week goes. This trip would put us about 4 hours away from the hospital so we have to be confident that we can do it. Her other sister will spend the weekend with us too so we would all enjoy some family time again.
We are so excited to be home for a week. They tell us to always be ready to return if needed, so we have things laid out or in the car. But, we feel optimistic that we will have a chance to enjoy this week. To all of you--I am sending hugs of happiness and appreciation for your prayers and support! |
Eileen11
| | Posted on Sunday, October 01, 2006 - 01:15 am: | |
Your letter sent tingles up my spine! I'm so thrilled for all of you. Many more prayers are coming your way each and every day. Isn't it amazing to actually watch God and prayer in action? |
Db4usa
| | Posted on Sunday, October 01, 2006 - 09:00 am: | |
WONDERFUL NEWS!!! You are still in our prayers. |
Miakev
| | Posted on Sunday, October 01, 2006 - 10:33 am: | |
So Happy that things are working out for all of you. Family time, a much needed break, and just being together.. Be Happy, you deserve it.. |
Gregswife
| | Posted on Sunday, October 01, 2006 - 02:55 pm: | |
Great news, Lisa! Enjoy your family time.
I wanted to tell you, I got 12 inches of hair cut off on Friday night and donated it to Locks Of Love. I told my hair dresser about Jana and we both cried when she cut my hair off It was tears of happiness that together we were helping some child somewhere. |
Artfrancine
| | Posted on Sunday, October 01, 2006 - 02:10 pm: | |
Rls, We are glad that things are starting to look "up". Love and prayers to Jana and your family.
Peggy, your posting was beautiful, what nice sentiments.
A & F |
Mel_g
| | Posted on Sunday, October 01, 2006 - 02:12 pm: | |
Great news, I am so happy you can spen some quality time with Jana away from the hospital! I am praying for your family and hope it all continues to go well for you! Have a great time together! |
Susiet
| | Posted on Sunday, October 01, 2006 - 05:18 pm: | |
Always looking for your posts and as always thinking of all of you and praying for you! Thanks again for thinking enough of us to keep us posted. Sue |
Knotandi
| | Posted on Sunday, October 01, 2006 - 04:28 pm: | |
Still praying for laughter and strength for your family. Just a quick note: our church service today was about not keeping the worry from difficult situations, but just giving it to God. I thought of ya'll. Let go and let God.
Andi |
Trey
| | Posted on Monday, October 02, 2006 - 09:10 am: | |
Congratulations- that is great!! Enjoy your time at home and keep going strong Jana! |
Lucy01
| | Posted on Monday, October 02, 2006 - 09:55 am: | |
Today, and everyday is a gift from God. I rejoice in Jana's progress. So glad to hear that Jana is able to get out. I hope ya'll have a wonderful week together. I continue to keep Jana and your family in my prayers. |
Razzldazzl
| | Posted on Monday, October 02, 2006 - 01:08 pm: | |
What awesome news to read you all will have some 'home time' away the hospital! How wonderful! Am always checking for this post and pray for continued strength as well as God's blessings to you all as Jana travels this road. This week must be a welcomed respite. If nothing else, this week together should give Jana as well as the family the power to make it through round 5, looking forward to seeing positive results after the evals come back. God Bless. |
Crabracers
| | Posted on Monday, October 02, 2006 - 04:23 pm: | |
Rls: Great news concerning Jana. We, along with everyone else, are pulling for her.
Today is Yom Kippur in the Jewish religion. The day of attonement. At services today, I said some special prayers for you and your family. I know God was listening. Continued forward progress for Jana. The Jewish people have been around for 5767 years. That's endurance. I wish the same endurance for your whole family. |
Tarheel_fan
| | Posted on Monday, October 02, 2006 - 07:43 pm: | |
what an awesome time together...enjoy each and every minute with the 5 of you!! praying that the weekend trip to see big sister will be a reality!!!!!!
love and prayers! jennifer & family |
Texasdee
| | Posted on Monday, October 02, 2006 - 10:26 pm: | |
Hope your Monday was great and what you all needed. We are thinking of you...Paul and Dee |
Rls
| | Posted on Tuesday, October 03, 2006 - 08:40 am: | |
Hi Everyone!
Our weekend was good, but Jana started running a slight fever Sunday night. We had to return to the hospital yesterday for a blood test so they checked her over and her platelets were dangerously low. So, we spent all of yesterday at the hospital for her to get platelets. She was not excited to spend one of her days of freedom at the hospital, but it can't be helped and we were able to return home. Her white count is still low, but at least measurable now. She is hoping to stop the shots soon and she can when her white count gets high enough. I'm not sure who hates the shots more--her or me...it really burns when she gets it but it is so hard for me to give it to her, know it hurts, and see the bruises after.
Her fever went up last night again but didn't get to the critical point. So, except for me getting up every hour to take her temperature--things are OK. Maddie has not left her side.
Gregswife--Thank you! I know you will make someone very happy. When Jana was little, she donated her hair to Locks of Love--how ironic is that!?
I've enclosed 2 pictures--one of her at the hotel enjoying her juice. Another of her in the hospital after a "care package" came for her...what a lot of loot!
~Lisa
 |
Crabracers
| | Posted on Tuesday, October 03, 2006 - 03:24 pm: | |
Rls: Love the two pictures of Jana. Her smile is wonderful. That looks like a great care package. That should keep her busy for a while.
We are headed to COR in a few days and I was wondering if you or Jana would like something. I would be more than happy to get anything you could think of and mail it when we get back. Don't be shy, if there is ANYTHING I can get for ANYONE, please just let me know. It's my treat.
I know what you mean about giving Jana those shots. When our daughter was little and having one of her seizures, I had to give her a medicine that had to be mixed with mineral oil, and administered rectally. That made for the fastest absorption into her system. I cried every time I had to do it. That medicine also burned and made her scream, even in the midst of her seizure. I kept repeating over and over, what my mother had told me many years ago. "If you do the right thing, things will work out for the best." Being a parent can be the toughest job we will ever have. Stay strong and know this is a necessary evil right now.
Please let me know about getting something from Jamaica. It's no problem. ritchnsyl@comcast.net |
Gregswife
| | Posted on Tuesday, October 03, 2006 - 06:22 pm: | |
holy moly!!!! That's quite the care package!!!
Tell Jana to keep that smile She's beautiful! |
Illinoiscouple
| | Posted on Wednesday, October 04, 2006 - 12:43 pm: | |
RIs...Tell Jana to enjoy that care package...she deserves it! The pics of her were so beautiful...her smile is one that I will never forget! I hope that the rest of your stay at home is a good one!!!! We are thinking about you all with lots of prayers! Angie from Illinois! |
Lisaroy
| | Posted on Wednesday, October 04, 2006 - 04:26 pm: | |
It is hard to believe looking at her that she is having a fight of her life. She looks wonderful and has such a great smile. I give you all credit. You are so strong, probably stronger than you know.Wishing you all well. Keeping you in our thoughts. What an amazing care package.
Lisa |
Miakev
| | Posted on Thursday, October 05, 2006 - 11:15 am: | |
Now thats what I would call a CARE package!
Thinking about all of you and sending good thoughts your way. Have a Great relaxing week at home.
mia |
Rls
| | Posted on Thursday, October 05, 2006 - 02:24 pm: | |
Great news...Jana's blood count was fine this morning so she is thrilled. And, she feels good so she has enjoyed her time at home. She is mostly excited because we are planning to go retrieve our college daughter tomorrow and Jana will get a chance to see her dorm and the campus. I can't tell you how excited Jana is about it. Then, both of our daughters will be home over the weekend so we are really looking forward to a great family time at home. Jana returns to the hospital on Monday for Round 5 of chemo treatments. Thanks for the positive thoughts and prayers that have been with her every step of the way!
Crabracers--I sent you an e-mail. Did you get it? |
Fairydolph
| | Posted on Thursday, October 05, 2006 - 02:26 pm: | |
WOW! An amazing care package! She looks so happy and beautiful. You are obviously doing a wonderful job at getting her to keep her spirits up. Way to go! |
Eileen11
| | Posted on Friday, October 06, 2006 - 01:58 am: | |
I wish we could all see her face when she sees her sister's "new" home! I can just imagine how excited she must be. God Bless Jana! |
Mobob
| | Posted on Friday, October 06, 2006 - 09:47 am: | |
Have a great weekend and good luck with round 5. Many prayers are coming Jana's way from New York. Keep the pictures and updates coming. It is so good to see how great Jana looks after going thru so much. She is a strong and beautiful young lady! |
Miakev
| | Posted on Friday, October 06, 2006 - 10:51 am: | |
How about a Family Pic?
Thoughts and Prayers continue.......
mia |
Buckeyegirl
| | Posted on Friday, October 06, 2006 - 07:37 pm: | |
She looks like an angel. I'm sure the angels are watching over her. Prayers will be increased for her and your family. I admire her strength and courage... and that of your entire family. |
Backdoc2b
| | Posted on Friday, October 06, 2006 - 09:23 pm: | |
Happy dance....happy dance! I had to do one for Jana. That's wonderful that her blood count was much better. The weekend with her family will rejuvenate her for round 5. I hope that you all had a safe trip to retrieve you college daughter. Enjoy your weekend together. Prayers from Iowa.
If you have time, please email me at shorty_nwu@hotmail.com. I have a question to ask you. It's good, not bad. Thanks! |
Texasdee
| | Posted on Saturday, October 07, 2006 - 12:37 am: | |
I just happened to think that you are all together and it made me smile...have a great wknd..hope jana was the queen of the dorm... |
Travibabiesgirl
| | Posted on Saturday, October 07, 2006 - 07:03 am: | |
So glad to hear Jana is doing well and you all are enjoying your family time together.
I recieved an e mail and I wanted to share it with every one. Jana is the one person I thought of when I read it and watched it. It reminded me that with determination and God's guidence we can achieve anything. I know Jana has the strength and detemination but if she should ever need the extra boast or if you feel like you can't make it though to the next step here is something I thought might help.
http://www.youtube.com/watch?v=ryCTIigaloQ
Strongest Dad in the World
[From Sports Illustrated, By Rick Reilly]
I try to be a good father. Give my kids mulligans.
Work nights to pay for their text messaging. Take them to swimsuit shoots. But compared with Dick Hoyt, I suck.
Eighty-five times he's pushed his disabled son, Rick,
26.2 miles in
marathons. Eight times he's not only pushed him 26.2 miles in a wheelchair but also towed him 2.4 miles in a dinghy
while swimming and pedaled him 112 miles in a seat on the handlebars--all in the same day.
Dick's also pulled him cross-country skiing, taken him on his back mountain climbing and once hauled him across the U.S.on a bike.
Makes taking your son bowling look a little lame,
right? And what has Rick done for his father? Not much--except save his life.
This love story began in Winchester, Mass., 43 years ago, when Rick was strangled by the umbilical cord during birth, leaving him
brain-damaged and unable to control his limbs.
``He'll be a vegetable the rest of his life;'' Dick says doctors told him and his wife, Judy, when Rick was nine months old. ``Put
him in an institution.''
But the Hoyts weren't buying it. They noticed the way Rick's eyes followed them around the room. When Rick was 11 they took him to the engineering department at Tufts University and asked if there was anything to help the boy communicate. ``No way,'' Dick says he was
told.
``There's nothing going on in his brain.'' "Tell him a joke,'' Dick countered. They did. Rick laughed. Turns out a lot was going on in his brain.
Rigged up with a computer that allowed him to control the cursor by touching a switch with the side of his head, Rick was finally able
to communicate. First words? ``Go Bruins!'' And after a high school classmate was paralyzed in an accident and the school organized a charity run for him, Rick pecked out, ``Dad, I want to
do that.''
Yeah, right. How was Dick, a self-described ``porker'' who never ran more than a mile at a time, going to push his son five miles? Still,
he tried.
``Then it was me who was handicapped,'' Dick says. ``I was sore for two weeks.'' That day changed Rick's life. ``Dad,'' he typed, ``when we were running, it felt like I wasn't disabled anymore!''
And that sentence changed Dick's life. He became
obsessed with giving Rick that feeling as often as he could. He got into such hard-belly shape that he and Rick were ready to try the 1979 Boston Marathon.
``No way,'' Dick was told by a race official. The
Hoyts weren't quite a single runner, and they weren't quite a wheelchair competitor. For a few years Dick and Rick just joined the massive
field and ran anyway, then they found a way to get into the race officially: In 1983 they ran another marathon so fast they made the
qualifying time for Boston the following year.
Then somebody said, ``Hey, Dick, why not a
triathlon?''
How's a guy who never learned to swim and hadn't
ridden a bike since he was six going to haul his 110-pound kid through a triathlon?
Still, Dick tried.
Now they've done 212 triathlons, including four
grueling 15-hour Ironmans in Hawaii. It must be a buzzkill to be a 25-year-old stud getting passed by an old guy towing a grown man in a dinghy, don't you think?
Hey, Dick, why not see how you'd do on your own? ``No way,'' he says.
Dick does it purely for ``the awesome feeling'' he gets seeing Rick with a cantaloupe smile as they run, swim and ride together.
This year, at ages 65 and 43, Dick and Rick finished their 24th Boston Marathon, in 5,083rd place out of more than 20,000 starters.
Their best time'? Two hours, 40 minutes in 1992--only 35 minutes off the world record, which, in case you don't keep track of these
things, happens to be held by a guy who was not
pushing another man in a wheelchair at the time.
``No question about it,'' Rick types. ``My dad is the Father of the Century.'' And Dick got something else out of all this too. Two years ago he had a mild heart attack during a race. Doctors found that one of his arteries was 95% clogged. ``If you hadn't been in such great
shape,'' one doctor told him, ``you probably would've died 15 years ago.''
So, in a way, Dick and Rick saved each other's life. Rick, who has his own apartment (he gets home care) and works in Boston, and Dick, retired from the military and living in Holland,
Mass., always find ways to be together. They give
speeches around the country and compete in some backbreaking race every weekend, including this Father's Day.
That night, Rick will buy his dad dinner, but the thing he really wants to give him is a gift he can never buy. ``The thing I'd most like,'' Rick types, ``is that my dad
sit in the chair and I push him once.'' |
Rls
| | Posted on Sunday, October 08, 2006 - 03:45 pm: | |
Wow-the video of the Hoyts...simply amazing! It's unbelievable the strength that people possess that they don't know about until they have to use it.
We have had a good weekend at home. We went to a Light the Night walk for the Leukemia & Lymphoma Society last night. Jana walked the entire 2 miles--I was amazed and impressed since her mode of exercise for the last 10 weeks has been from the bed to the bathroom.
We had our Sunday tradition this morning which included a brunch with all 3 girls here--lots of chatting and laughing happening! Bittersweet...it was hard to say goodbye to the oldest daughter as she went back to college and will be hard to say goodbye to the middle daughter and hard for Jana to say goodbye to home and Maddie. We are so very grateful for our time at home and we are heading back so optimistic that after the completion of this round, the news will be great and we will be making plans for our 4 months of maintenance treatments. Wow--doesn't that sound good!?
We head back to the hospital early in the morning for Round 5. Another step in our journey! Keep sending positive thoughts and prayers--we appreciate you so much. |
Tarheel_fan
| | Posted on Sunday, October 08, 2006 - 02:52 pm: | |
LIFTING UP PRAYERS FOR ROUND FIVE...TELL JANA TO KNOCK 'EM OUT!!!!!!!!! JENN |
Cjb0715
| | Posted on Monday, October 09, 2006 - 06:23 am: | |
I've seen the Hoyt's run on several occasions during the Boston Marathon, and what an inspiration they are! To see the smile on Rick's face and the determination in his father's eyes as they climb Heartbreak Hill. I don't know how they do it.
But it proves one thing...there is always hope. Never give up Jana, you can do it. It may be an uphill battle for a while, but you can win the war. Keep the faith, we're all praying for you. |
Susiet
| | Posted on Monday, October 09, 2006 - 05:23 pm: | |
What a family! That smile is enough to light up the night itself! Still praying for all of you! Sue |
Eileen11
| | Posted on Tuesday, October 10, 2006 - 01:13 am: | |
Continued prayers and positive thoughts coming your way! I'm so thrilled that Jana was able to have a good family weekend! |
Rls
| | Posted on Tuesday, October 10, 2006 - 10:05 pm: | |
Hello Everyone!
We are back at it with mega chemo dripping in. We were able to move back into the same patient room she has been in since July. Jana is so happy about that. It is comfortable to her. It is not the biggest room they have, but she has a wall right next to her bed where she puts many photos of family and friends. This is very comforting to her.
She did OK yesterday as the chemo began and was able to eat and work with her tutor. But by mid-morning today, she was pretty pathetic with pain and nausea. So, they started the round-the-clock medicines to help her sleep and try to ease the pain and nausea. It worked pretty well today--she has slept off and on most of the day.
When we were home over the last week, I took the time to look at our photos from CSA. I downloaded them a while after we were in the hospital and ordered them to be printed. I finally took the time to look at them. Wow--I miss it so much! Sometimes, I feel cheated that we went on this awesome vacation to this beautiful place and I didn't even get to enjoy telling others about it. Within a few days of return, we were at the hospital with Jana and you know we weren't talking about vacation then! They have taught Jana about imagery as a pain management and calming strategy. She uses our family vacations to Disney as her image. I know you can guess what I use--hmmmm, yep, I can picture it now... |
Susiet
| | Posted on Wednesday, October 11, 2006 - 06:27 am: | |
I never thought we would go on vacation again either (when our son was diagnosed) but everything is good now & we will be at CN in Dec. Just keep those good thoughts til Jana is better and then celebrate her wellness with a trip-- Either for all of you are just the 2 of you--you will need it!!! As always, our prayers are with all of you! Sue |
Crabracers
| | Posted on Wednesday, October 11, 2006 - 07:29 am: | |
Rls: I know excactly how much you miss CSA. But if it were not for the fact that you had that experience, you would not have this Couples family to help you through this most difficult time. You too can use this imagery as Jana uses hers. Stay strong for each other and for your family. You are not alone. |
Travibabiesgirl
| | Posted on Wednesday, October 11, 2006 - 09:13 am: | |
Just wanted to take a minute to let you know my thoughts and prayers continue to be with you and your family. You and Jana are such troopers and an inspiration to all of us. Hang in there each step brings you closer to this being all over and Jana being healthy again. |
Miakev
| | Posted on Wednesday, October 11, 2006 - 10:59 am: | |
Lisa,
Hang in there, Keep the Couples image in your mind, I know it will help when things look bleak.
Good times are ahead for you and your family.
Continued prayers and good positive thoughts to all of you. Jana is a strong little girl, and she will get thru this, and so will you. Think, Disney maybe a year from now, then maybe Couples!
Hang in there, we are all with you!
mia |
Eileen11
| | Posted on Thursday, October 12, 2006 - 01:24 am: | |
Wonderful thoughts and many prayers for Jana and also for your whole family. The chemo is almost over....hang in there! And, yes, picture yourself back on the beach...or better yet...back at home with all the girls talking at once! |
Tarheel_fan
| | Posted on Wednesday, October 11, 2006 - 08:27 pm: | |
love and prayers, jennifer |
Texasdee
| | Posted on Thursday, October 12, 2006 - 12:13 am: | |
I am glad you mentioned imagery for healing purposes. When I pray for Jana, I will remember to picture her well, happy, and doing what she likes to do when healthy.. could you please tell us what her favorite things to do are? Thanks. Love and prayers from Texas!!! |
Rls
| | Posted on Friday, October 13, 2006 - 11:14 am: | |
Hello my MB friends,
Let me first update and then, Texasdee--I would be happy to tell you about Jana. I guess I sometimes forget that you don't know pre-chemo Jana! I feel like you all are our friends, and therefore would know all about her!
This week is going as expected...chemo running round the clock accompanied by major nausea. The medicines to help with the nausea are running round the clock too and they are bringing sleep which is the best alternative to nausea and vomiting.
Our Jana~Jana is a smart child who loves to read and write stories. She can spend hours on the computer writing stories and "chatting" with her friends. She loves her cat and loves little children--I think she will end up being a teacher or someone that deals with young children. She loves dance and takes dance lessons in all types of dance: ballet, jazz, and tap. She loves to sing in the church and school choir. Jana is a very giving, compassionate, social, and smiley person--loves her friends and talking...she rarely spends more than a few days without being with her friends or favorite cousin. Jana loves to go camping and sit by the campfire, and travel as a family--Walt Disney World is her favorite trip.
She's not a child that sits in front of the TV wasting time--she is always out there living life to the fullest. That makes it even harder for us, and our friends and family to see her like this--in bed and sick. She loves everything she does and it makes her sad to miss out and know what others are doing what she can't participate in right now.
But, we keep looking to the future to a time when she will be back in those activities and be able to return to the things she loves. Keep praying and sending good thoughts. Thanks my friends!
~Lisa |
Miakev
| | Posted on Friday, October 13, 2006 - 05:51 pm: | |
Lisa
Thank you for helping us know Jana better. We (I think I can speak for all of us) feel we know you and your family, and sometimes forget that we haven't actually met. Checking the MB for your posts is the first thing I do when I get here to work and turn on the comp. It is very important to me to find out how Jana is doing.
Somehow I think we knew that Jana would be a very outgoing, social, compassionate girl. She just Shines! |
Knotandi
| | Posted on Friday, October 13, 2006 - 06:04 pm: | |
Lisa- Still sending thoughts of laughter and strength to you and yours. A lot of the times when younger people overcome an illness such as Jana's , they become great advocates in adulthood for children as they were. How fantastic Jana would be? Fab, I bet. I can envision years down the road( and all of us same ol posters will still be here) and we are remembering when Lisa's lil Jana was proving to us all how strong she was.And she will be posting too, and probably telling us about her student or patient who is fighting the same kind of fight she did. I know I sound like a weirdo, but I believe in circles of life. She is just being prepared for hers. Chins up and laugh!!!!! |
Crabracers
| | Posted on Friday, October 13, 2006 - 05:30 pm: | |
Lisa: Your lastest report is positive and uplifting. Thanks for sharing the info about Jana. The more I learn, the more I feel as though I have known her forever. Sending warm wishes from Jamaica. More later.
Richie |
Tommywommy
| | Posted on Friday, October 13, 2006 - 06:20 pm: | |
Rls..Yes,you and Jana have a whole lot of friends on this MB..Peggy and I are praying daily for Jana..The good LORD will take care of her and her family..Thanks so much for keeping us updated. |
Texasdee
| | Posted on Friday, October 13, 2006 - 11:34 pm: | |
Thanks sooo much for the description. I can picture her so well doing all these things and will include these wonderful pictures when I talk to the BIG GUY!!! He must be so proud of this little girl!!! And her MOM!!! Love and prayers!!! |
Tarheel_fan
| | Posted on Saturday, October 14, 2006 - 01:01 pm: | |
THANKS FOR LETTING US KNOW THE THINGS JANA ENJOYS WHEN SHE IS WELL...BOTH OF OUR GIRLS ARE DANCERS TOO!! KERRY HAS TAKEN FOR 11 YEARS AND THIS IS KATELEIGH'S 4TH YEAR....BALLET ONLY FOR KATE THIS YEAR...WE HAVE A GREAT NEW BALLET TEACHER. TELL HER TO DANCE IN HER MIND...I KNOW SHE PROBABLY ALREADY DOES!! PRAYERS, JENNIFER |
Eileen11
| | Posted on Sunday, October 15, 2006 - 01:11 am: | |
Lisa, I hope Jana's weekend AND yours went well. I came upon this saying and my thoughts turned to you...I hope you find some comfort in it -
If God brings you to it, He will bring you through it.
Happy moments, praise God.
Difficult moments, seek God.
Quiet moments, worship God.
Painful moments, trust God.
Every moment, thank God.
Eileen |
Trishfrommich
| | Posted on Saturday, October 14, 2006 - 11:10 pm: | |
Lisa....I have been following Jana's Journey since the beginning on this MB, and felt compelled to write tonight. Thank you SO much for sharing your beautiful daughter with all of us. And by sharing in your daily struggles, we have each been able to appreciate our own health and families all the more. That is your gift to all of US. Your Jana is a fighter, and you are such a strong and wonderful mom--you and your family are an inspiration to ALL of us. Having been through a similar medical tragedy myself last year....and having my own husband and children to worry about....I send all my prayers and positive energy to you and your family on a daily basis. And I tell ya, I look at the "loot" on her bed from a care package, and really want to send one of my own. Please let your friends here on the Couples MB know when we can smother "our Jana" with love and stuff to make her smile. Our thoughts and prayers are with you, my friend. |
Cmweinman
| | Posted on Sunday, October 15, 2006 - 07:25 am: | |
While you may be hesitant to post your address or the hospital she is at, and understandably so, what about a PO box? I pray for her often and would love to send some funny cards to cheer her up. Your family all continue to be in our prayers. Her smile is an inspiration to me on many of days when I feel overwhelmed by the silliest of things, I think of Jana and all the other people out there who fight daily to be healthy and realize I should stop felling sorry for myself. Hope the worst of this round is over! |
Rls
| | Posted on Sunday, October 15, 2006 - 11:08 am: | |
Hello all,
Thanks again for your kind thoughts, prayers, and words. You are such special people to think of us so kindly and generously. Jana has finished her chemo for this round. Her hemoglobin was very low so she received blood yesterday. She is still not eating well and is receiving multiple IV medicines for her nausea, so I think it will be a few days before we get to go home. This upcoming week will be a waiting game...maybe go home for a few days, wait until her blood count recovers, and then the scans, biopsies, and tests will occur the week of October 23rd. The results of these tests will determine the next step. We are still very optimistic that her treatment course will continue to follow the best scenario possible. However, we are very anxious to get the tests completed and know what we are facing in the months ahead. Waiting is very difficult.
I am enclosing several pictures that you may enjoy!
I am also enclosing our e-mail address. Please feel free to e-mail me if you want Jana's address.
Russ-Lisa@hotmail.com Just a note: I got this e-mail address when we went to CSA so the girls could e-mail us. Right now, we are using it all the time because it's the one we can access remotely from the hospital. However, it is not always reliable, so if you don't hear from me...post your e-mail address and I will respond.
Thanks for your encouragement and good wishes. Some days, it is so hard to keep up the stamina that this battle requires. Your messages help so much. ~Lisa
First dance recital!
Dance recital Spring 2006
Jana and family Spring 2006-looks pretty healthy!! |
Artfrancine
| | Posted on Sunday, October 15, 2006 - 06:33 pm: | |
God Bless You and Your Beautiful Family. |
Fairydolph
| | Posted on Sunday, October 15, 2006 - 08:08 pm: | |
Lisa,
Those are wonderful pictures. Thank you for sharing. I will be emailing you, but incase you don't receive it, my email addy is fairydolph@yahoo.ca. We would love to send a card to Jana.
Lots of positive thoughts coming your way Jana! |
Lisaroy
| | Posted on Sunday, October 15, 2006 - 07:15 pm: | |
Lisa, Those dance pictures are so precious. I remember my daughter in her dance recitals and now like your older daughter she too is in college. What a beautiful family picture. Jana looks the picture of health. No one ever believes that your world can get turned upside down so quickly. Hopefully soon you will be able to take another family picture like that. Thank you for sharing with us. You are all a truly amazing family and in our thoughts. Lisa |
Rls
| | Posted on Monday, October 16, 2006 - 08:51 am: | |
Hello!
I have had a request from the many people who pray for Jana to connect names with the family photo. Russ and Lisa (Mom and Dad); Holly (oldest daughter--the graduate, now college daughter); Emily (middle daughter) and of course, Jana. (Many people say it wrong. It is pronounced with a "long A" like "Jay-na")
Thanks so much for your support and prayers. ~Lisa |
1georgia
| | Posted on Monday, October 16, 2006 - 10:14 am: | |
Lisa: Just sent you an e-mail requesting Jana's address. Hope that it comes through. You, your family and Jana are faithfully in my prayers. May God surround you with His strength and peace. Kathy |
Illinoiscouple
| | Posted on Monday, October 16, 2006 - 03:08 pm: | |
RIs Those pictures are so wonderful and it is so nice to put faces with you all. I am so praying that the test will show you all good news! You have a lovely family and the strength you all have is amazing....keep the faith and our prayers are with you each and everyday! Angie from Illinois |
Miakev
| | Posted on Monday, October 16, 2006 - 02:46 pm: | |
Lisa
Thank You for sharing your family with us. Now we can picture you all as we think of and pray for you. you have a beautiful family, and Jana is adorible in the dance pics. We will keep the 23rd in our minds and send exta support on that day.. Praying for the best of news. |
Eileen11
| | Posted on Wednesday, October 18, 2006 - 02:53 am: | |
Thank you for the pictures and the names. It's so much easier to have a picture in your mind when you pray...names, also.
Just waiting to hear the latest on Jana...and thanks for the correct pronunciation of her name! |
Rls
| | Posted on Wednesday, October 18, 2006 - 11:55 am: | |
Jana got to come home yesterday!! She is so happy to be hanging out with Maddie again. We got home in time to go to our middle daughter's tennis banquet and choir concert while Jana stayed home with grandparents. It was my first time in the community (except for early church where I see very few people) since Jana's diagnosis. People are so supportive--but it feels strange to be out in a school event and see people we haven't seen for so long. It is difficult, actually.
Jana's white count is pathetic as expected, so we have to keep her fairly isolated. If she has to be around others like when we were leaving the hospital, she has to wear a mask to help ward off any germs. But, she feels good.
Jana goes back tomorrow for an ultrasound of all abdominal organs and area where she had her tumor, CAT scan (ugh--has to drink yucky stuff), and blood work. I am sure she will have to get platelets while she is there too--it could be a long day! But, we will probably be able to return home tomorrow for the weekend.
We are unsure of the schedule for the tests next week. Jana will most likely be able to stay home throughout next week except for the trips back and forth for outpatient scans and biopsies. I wish we lived closer to the hospital--any trip takes most of a day! But, we have to get the tests done so we know that the prayers have brought the positive results we are hoping for! When (not if) the tests show minimal or no disease left in her body, she will move into 4 months of treatments to finish her protocal. That would mean that we are almost half way done...but in another way, I can't believe we are only half way done. Whew! |
Scottdenise
| | Posted on Wednesday, October 18, 2006 - 06:54 pm: | |
Thank you so much for the pictures - we continue to pray for Jana and her quick recovery - you guys are just awesome - May God's blessings be with your family and may He continue to comfort our girl! |
Texasdee
| | Posted on Wednesday, October 18, 2006 - 11:27 pm: | |
Everytime I think of your family for the next few days, I will pray for Jana and all of you...Sunny just called and I read the msg to her and she will pray for Jana also!!! We are really excited about the great results we have all been asking God for!! |
Eileen11
| | Posted on Thursday, October 19, 2006 - 12:42 am: | |
Lisa, you're so strong! Just think, you've made the half way mark. Keep visulizing the cup half full and remember that you started this nightmare with an empty cup. Each day the cup gets a few more drops added until it overflows with good news and joy!
Eileen |
Razzldazzl
| | Posted on Thursday, October 19, 2006 - 08:01 am: | |
Awesome news to read Jana's home. Another step towards the finish line, even though you need to travel back & forth for testing and such to the hospital. It's amazing the strength and the perseverance the good Lord has provided to get you all to this stage. May God continue to put His healing hands on Jana and provide her 'support system' strength to carry on. You folks are doing a fine job. |
Miakev
| | Posted on Thursday, October 19, 2006 - 11:39 am: | |
Hang in there, It's half way over! Look at it like this, The Down Hill stretch to Good Health!
Jana is strong, this will pass quickly. |
Rae_dave
| | Posted on Thursday, October 19, 2006 - 02:06 pm: | |
Lisa, thank you for your constant updates. I am so glad you have this outlet for your thoughts and feelings. You have helped so many of us be thankful for the blessings we have and it is the best therapy for me, at times, to have someone else to think and pray about. Jana has become the focus of many many good thoughts sent out to your family, and will continue for the rest of this journey. I am not good at expressing myself, but as a fellow woman, mom, wife, PERSON, you are a sister to me in the abstract. I am awed by your strength and courageous support of Jana and your whole family. Please be good to yourself, whenever and however you can. Blessings and hugs!
~Raelene |
Crabracers
| | Posted on Thursday, October 19, 2006 - 05:24 pm: | |
Lisa: Halfway is a long way from the beginning. Keep up your positive attitude. Give Jana our love and good wishes. |
Eileen11
| | Posted on Friday, October 20, 2006 - 03:17 am: | |
I hope your weekend is going well! Jana is always in our thoughts and prayers. Keep up the momentum God gave you, as hard as it is right now. You have many folks right behind you and God is trailing along after us. |
Sophiaxoxo
| | Posted on Friday, October 20, 2006 - 04:14 pm: | |
Hi Lisa and Family...Thanks for sharing your family pics. You have a very beautiful family and Jana is so cute in her dance costumes. I loved that time with my two girls (now 28 and 21). They both danced and modeled and the oldest took drama classes.
I've kept up with your postings of Jana and continue to pray for her and your family, as she progresses in her treatment. My heart breaks to hear that the side effects of the medication make her so sick. The good Lord has given you and your family much strength to deal with this. Continue to keep the faith...it's working!
You are a very special lady...being able to watch over your two oldest daughters...and then caring for Jana and keeping all the schedules. That's tough work! And I'm sure Dad is just as busy! You're doing a great job...All of You!!!
Many blessings and prayers to you all!
Much Love,
Donna
P.S. Please give Jana a big kiss and hug for me! |
Tommywommy
| | Posted on Friday, October 20, 2006 - 06:53 pm: | |
Jana.Rls..Thanks for keeping us updated..We are still praying..Prayers work..The good LORD will do with is right.
Jana..Hang in there and get well soon so you can visit a Couples resort.
EVERYONE loves you. |
Rls
| | Posted on Friday, October 20, 2006 - 08:44 pm: | |
Hello!
Our visit home was rather short-lived. She came home on a Tuesday. On Thursday, we returned for a CAT scan, ultrasound, and blood and platelets. We were at the hospital for about 11 hours. Just as we were ready to sleep in and get things done over the weekend, the Dr. called this morning (Friday). She is very concerned about her low blood count and feels very nervous having her so far away from the hospital when she could develop a fever or infection quickly and not be able to fight it off.
So, she gave us the option of re-admission to the hospital, which none of us were excited about...or staying in a hotel close to the hospital which is what we opted for. So, we packed up, and headed back 2 hours to check into a hotel close to the hospital. We are staying in a hotel where they have a full kitchen and living room which makes it seem a little like home.
Jana was very disappointed to leave Maddie and our house, so we are trying to make it a party--carving pumpkins, baking cookies, making spaghetti, etc. We are thinking that we will stay until Monday. Monday will be a marathon day at the hospital of several different tests.
We are hoping it is safe to return home for Tuesday and Wednesday before the bone marrow biopsy on Thursday. And, say prayers--hoping to get to our oldest daughter's parents weekend at college before returning for the next treatment round on the 30th.
Living in limbo is stressful and exhausting. As always, Jana is being a trooper and making the best of it. |
Smilemon
| | Posted on Saturday, October 21, 2006 - 09:39 am: | |
You are all still in our thoughts and prayers daily. Sending Hugs and Kisses to Jana as well. All of you keep thinking of that "happy place" to pass the time. |
Eileen11
| | Posted on Sunday, October 22, 2006 - 01:26 am: | |
Oh Lisa, I'm so sorry that Jana couldn't spend her whole time at home. Your little girl has been through so much...you're whole family has been through so much. Just try to remember...it's half over...it's half over...
Love and prayers for your family and especially Jana.
Eileen |
Rls
| | Posted on Sunday, October 22, 2006 - 03:47 pm: | |
Jana is feeling down right now--she wants to go home!! But, her blood count is soooo low. They gave her platelets today (Sunday) and the Dr. recommended we stay close again tonight. We have to be back in the area tomorrow for scans and tests, so it's OK. But, a hotel is not the same as home!! We are so anxious to know the results of the tests this week--it just seems the time is dragging along so slowly.
We have tried to do some fun things and I have enclosed a picture of Jana after we carved pumpkins last night at the hotel.
 |
Db4usa
| | Posted on Sunday, October 22, 2006 - 05:51 pm: | |
This precious little girl has touched so many hearts. Your family is still in my prayers. I think of you so often. Keep pulling that strength from God and rest in his arms.
June |
Cathyjoe
| | Posted on Sunday, October 22, 2006 - 06:02 pm: | |
So sorry your stay home was cut short. Big prayers that all her tests come out well so she and you can go home Tuesday and Wednesday. Good wishes coming your way!!!
Hope you guys can make it to parents weekend for your other daughter. |
Eileen11
| | Posted on Monday, October 23, 2006 - 01:03 am: | |
Great pumpkin, Jana! Did you roast the seeds?
Eileen |
Tommywommy
| | Posted on Monday, October 23, 2006 - 07:32 pm: | |
Hello Jana and Lisa..
Jana...Great looking pumpkin.
We,all of the guests of Couples,are thinking of you daily and saying our prayers.We are so proud of you..Hope you can return home for much longer visits soon.
Much love to you.
Tommywommy |
Backdoc2b
| | Posted on Tuesday, October 24, 2006 - 06:46 am: | |
Lisa and Jana~
Hello from India! I wanted to check and see how things were going while I was here. I hope that things start to look up. Many, many prayers have been said for you and your family. I pray that Jana starts to feel better soon.
C |
4beachbums
| | Posted on Tuesday, October 24, 2006 - 06:10 pm: | |
WE ALL HAVE OUR FINGERS CROSSED, FOR SOME GOOD NEWS!!!!!!!!!!!!!! |
Rls
| | Posted on Tuesday, October 24, 2006 - 09:25 pm: | |
We got home on Monday about 6:00 after spending 3 days in a hotel and after a grueling day of tests and more. The CAT scan results show everything to be "within normal limits" which was somewhat to be expected but still good news. The critical tests for Jana are the PET scan and the bone marrow biopsy. We return to the hospital tomorrow (Wednesday) for a blood test again..my guess is that she may have to get some blood products tomorrow...and then stay overnight near the hospital for a very early morning trip on Thursday to the OR for the bone marrow biopsy. We should get the PET scan results tomorrow and hopefully tentative results of the biopsy on Thursday afternoon. She also had an ultrasound done of her major organs and an echocardiogram to be sure her body is still doing well with the chemo medicines and is able to tolerate more.
We are so optimistic about the test results, but this is stressful! Today has been a busy day as we unpacked, packed, sorted and tried to cram everything into our one day at home. Some of Jana's friends skipped part of their school day to bring lunch and eat and chat with her. That was sweet and made her so happy.
We are still optimistic that we will make it to Holly's parents weekend at college on Friday. We are hoping Jana feels well enough to be away from the hospital and hang out at the hotel with us. Russ' brother lives close to the college, so Jana is excited about maybe spending the day with her uncle while we do the football game and more with Holly. It would be so thrilling to be celebrating good news this weekend! |
Susiet
| | Posted on Wednesday, October 25, 2006 - 08:28 am: | |
When this is all over and Jana is okay, you will look back on this and wonder how you did it. But, you are doing it and doing it very well. Good days, not so good days--that's the game with this thing and you are all handling this with class! I think the postings may be helping you a little (I like to think that anyway). Just be assured that we are all behind you and we are praying as hard as we can and feel like we know your family and appreciate that you are sharing your trials with us. Jana, thanks for letting your Mom tell us all about you. Prayers and thoughts to you always. Sue |
Susiet
| | Posted on Wednesday, October 25, 2006 - 08:27 am: | |
When this is all over and Jana is okay, you will look back on this and wonder how you did it. But, you are doing it and doing it very well. Good days, not so good days--that's the game with this thing and you are all handling this with class! I think the postings may be helping you a little (I like to think that anyway). Just be assured that we are all behind you and we are praying as hard as we can and feel like we know your family and appreciate that you are sharing your trials with us. Jana, thanks for letting your Mom tell us all about you. Prayers and thoughts to you always. Sue |
Miakev
| | Posted on Wednesday, October 25, 2006 - 05:46 pm: | |
Lisa,
Tommywommy coined it so right, Jana is our Couples Girl! We will all be waiting for the test results and we will all be praying for the best rusults! Let us know how things are when you have a minute...We are all with you!
Hang in there, better days ahead!
mia |
Rls
| | Posted on Wednesday, October 25, 2006 - 09:37 pm: | |
Another piece of good news...
Jana's PET scan results were good. On a PET scan, affected areas "light up". So, all of the areas (the spot on the liver and some lymph nodes) that lit up previously were gone...in other words, they did not light up this time. There were a few areas of the bone marrow that still lit up...HOWEVER, that is probably due to the fact that her bone marrow is still in the recovery phase from the chemo. So, since the bone marrow is not in "perfect condition" yet, (since her white count is still very low and in recovery phase)--it is not unusual for the bone marrow to light up on a PET scan. It would take about 2-3 weeks after the completion of chemo to get a completely clean reading and we don't have that time to wait before we move on. However, the Dr. is NOT concerned and that's good news.
The final and ultimate confirmation will come tomorrow when Jana has the bone marrow biopsy. Waiting is soooo hard!
Her red blood count is low so she will get blood after her biopsy tomorrow. But, since her white count is better, no more shots this round and she can go in public without a mask. Since we had the evening ahead of us since we are staying close to the hospital tonight, we went to the mall. The first shopping trip for Jana since July! It was fun but after a few stops, she was tired and we headed to the hotel. It will be an early morning as we have to be in pre-op by 6:30 am.
We are so anxious to get the results and hope to be celebrating at parents' weekend this weekend. Then it is back to the hospital on Monday for the start of the next treatment cycle. But, hopefully, the good news tomorrow will help boost our stamina to finish off those nasty cancer cells with the end in sight!!
Keep praying...I know you will. |
Cjb0715
| | Posted on Thursday, October 26, 2006 - 06:17 am: | |
Rls, Jana and family:
I am sooo happy to hear the positive news. It brought tears of joy to my eyes as I read your last post.
Jana, keep up the good work and know that we are all praying for you. |
Miakev
| | Posted on Thursday, October 26, 2006 - 10:10 am: | |
AWSOME News on the pet scan!! Keep the good news rolling! That Parents weekend celebration sounds like the thing to plan for..More and more prayers and positive thoughts sent your way!!
mia |
Travibabiesgirl
| | Posted on Thursday, October 26, 2006 - 09:31 am: | |
Yeah I am so glad to hear that great news. I am so glad to hear you all are on the down hill swing, Almost over, and the cure right around the corner. Looking forward to the message that says we are done and she is cancer free. My prayers continue each and everyday for you and your family. |
Texasdee
| | Posted on Thursday, October 26, 2006 - 11:39 am: | |
Am putting you all on another prayer list. It is a very large group of women who meet once a yr at a retreat. They absolutely love to pray for other people...Will forward emails to you guys....Love and prayers from Texas |
Cathyjoe
| | Posted on Thursday, October 26, 2006 - 09:06 am: | |
So thrilled to hear the postive news!!!
And I agree waiting is the hardest part.
Keeping our fingers crossed for more good news today. |
Rls
| | Posted on Thursday, October 26, 2006 - 04:35 pm: | |
Hello my friends,
The PRELIMINARY results show that Jana’s bone marrow is FINE!! However, there are more in-depth tests to be run which won’t happen until tomorrow because of the process they have to use. We are cautiously excited but we will not know for absolute certain until tomorrow or Monday. But, we feel good about what we know of all the test results so far, with the final “YES we did it!” coming soon.
It has been a long day for Jana and all of us, actually! Jana is sore from the biopsies which they took from both hips. She got the unit of blood that she needed and we finally left the hospital about 3:00. She is looking forward to the weekend to visit with sister Holly at college. Nothing slows Jana down, but we will have to wait and see what adventures she is able to do.
The ongoing plan is for Jana to be back in the hospital on Monday (pending adequate blood count) for the beginning of the maintenance rounds which are 4 treatment cycles, each lasting approximately a month each cycle. It’s the same nasty chemo medicines she has had previously so please keep the prayer lines going…after you give thanks for the good results we have received thus far. Optimistically, we could be done by the end of February, which at times seems within reach and other times seems so far away…
Thank you for your ongoing support, love, and prayers. We could not have done this without you. Sending love and grateful hugs from us to you. |
Melanie
| | Posted on Thursday, October 26, 2006 - 05:02 pm: | |
This is excellent to hear! U guys must be thrilled with the news u've received so far. Keep on keepin on and February cannot come soon enough :-) |
Tommywommy
| | Posted on Thursday, October 26, 2006 - 04:55 pm: | |
Rls..We look forward to good news and we appreciate you keepimg us updated..I hope ,and believe,that Jana will have a great weekend..
Jana.."Our Couples Girl"..Keep your chin and spirits up..We know you will and we,all of your Couples Family,are so very proud of you. |
Fairydolph
| | Posted on Thursday, October 26, 2006 - 05:08 pm: | |
Lisa, your posts and updates always manage to bring tears to my eyes. I am sooooooooo happy to hear about all the good news you are receiving on Jana. She is such a fighter and so is her family.
Continued thoughts and positive energy. Take care and enjoy the wknd!!! |
Mzambo
| | Posted on Thursday, October 26, 2006 - 06:04 pm: | |
Lisa,
I think I told you before, my dad had leukemia, so much of what you are going through is very famiilar to me.
I know how painful the bone marrow tests are, she is one brave little girl, my dad was a big man with a good pain tolerance and even he dreaded those bone marrow tests.
She is so brave!!!!!!!!!! Hang in there mom!!!! |
Db4usa
| | Posted on Thursday, October 26, 2006 - 06:41 pm: | |
Whooohooo! It is all sounding very good. Prayers are still going up, my dear. |
Lisaroy
| | Posted on Thursday, October 26, 2006 - 09:01 pm: | |
The news is sounding so good. We will continue with all the good wishes, prayers and postivie thoughts that the rest of the news will be good. Hope you have a wonderful time visiting with Holly as you all deserve it. |
Sophiaxoxo
| | Posted on Friday, October 27, 2006 - 03:27 am: | |
Hi Lisa, we're so happy to hear the good news and thank you for sharing it with us.
It's great to have something to look forward to this weekend and share with the family. A change of scenery will do wonders for Jana and all of you.
We're so happy to know that God is working his miracles, as he always does when we believe in Him. Looking forward to more great news! Have a great weekend!
Love,
Donna and Joe |
Trey
| | Posted on Friday, October 27, 2006 - 09:39 am: | |
Congratulations! That is is great new; Jana will continue to kick this and move on. |
Tarheel_fan
| | Posted on Friday, October 27, 2006 - 05:48 pm: | |
WOW...good news !! we are soooo happy and excited! February is "reachable"...so glad for some good news for you all!! Have a fun weekend!
Love, Jennifer |
Rls
| | Posted on Monday, October 30, 2006 - 12:24 pm: | |
Hello our friends,
THE SUPER GREAT NEWS is that all the final tests were consistent with the preliminary results which indicate that Jana’s system is essentially cancer-free now. It is soooo great to say that!! We can hardly believe it. God has answered our prayers. We can’t tell you how much we appreciate all of you supporting us, cheering us on, and keeping those prayer lines going. Thank you.
We are back at the hospital and Jana is ready to start her next round. Chemo starts today and continues for the rest of this week. She has a spinal injection tomorrow morning which she is already dreading. This will be like previous rounds and she will stay in the hospital until the chemo for this round is in and she is somewhat recovered.
Jana is in a different room and is not real happy about that…smaller room, no wall for pictures right beside her bed, no shower in the room, just out of her comfort zone…but oh well, what can we do besides just do what we came here to do---get better and get out!
Give thanks for God’s goodness. And pray for Jana’s continued health and stamina to cope with the medicines that must be endured once again. Four months to go…we CAN do it. |
Cathyjoe
| | Posted on Monday, October 30, 2006 - 02:25 pm: | |
Great news!!!!!
We will keep Jana and your family in our thoughts as you guys head into the next round. |
Lisaroy
| | Posted on Monday, October 30, 2006 - 02:18 pm: | |
Yes you can do it! This is such wonderful news. We are so excited for Jana and your whole family. In our thoughts.
Hope you were also able to visit your daughter in College this weekend. |
Gregswife
| | Posted on Monday, October 30, 2006 - 02:59 pm: | |
YAAAAAAAAAAAAAAY!!!! The tears of joy are flowing! I am thrilled for Jana and your family! What fantastic news! Yes, 4 months...you CAN do it! We are all pulling for our "Couples Girl"!!!
::clapping wildly and giving high fives::
GO JANA!
GO JANA! |
Trey
| | Posted on Monday, October 30, 2006 - 03:38 pm: | |
GREAT NEWS!!!
Good luck with these last few rounds. |
Trish
| | Posted on Monday, October 30, 2006 - 03:16 pm: | |
Lisa- I got goose bumps when I reads the words "cancer-free"! Four months will fly by and you can put all of this behind you. I'll bet you and your family are so happy and relieved! |
Tommywommy
| | Posted on Monday, October 30, 2006 - 02:53 pm: | |
Praise the Lord...We will contiune to pray..
Thanks Lisa. |
R_n_b
| | Posted on Monday, October 30, 2006 - 06:53 pm: | |
Wow, this is great news--keep up the good work Jana--and family! |
Texasglo
| | Posted on Monday, October 30, 2006 - 07:32 pm: | |
Through a friend, Texasdee, I am just learning about the challenges that have hit your family and I will read more and learn how best I can pray for Jana. That is awesome news in your last report, Praise God!
Tell Jana to keep her chin up and stay positive. She is a cutie! |
Db4usa
| | Posted on Monday, October 30, 2006 - 06:59 pm: | |
My prayer today will be to give thanks. And as always, I pray for Jana's strength and courage. I will also pray for the family's stamina. God is good.
theburtons@charter.net
June |
Michelle__vern
| | Posted on Monday, October 30, 2006 - 07:25 pm: | |
We pray for continued good news about Jana! Keep us all posted! |
Texasdee
| | Posted on Monday, October 30, 2006 - 07:37 pm: | |
Dear Lisa and family,
Thank you God!!!! Can you believe it!? I was so anxious to check the board today and am really excited and so happy for you!!! I have called my ladies that have been praying and you may hear from this on this board. I did not give anyone your email but figured the message board was ok. I also called Sunny and she is very excited also!! Give my love to that great little girl of yours!!! |
Cjb0715
| | Posted on Monday, October 30, 2006 - 07:08 pm: | |
Rls, When I saw your post, my heart was pounding with nervous anticipation waiting for the webpage to open.
I rejoiced outloud when I read the wonderful news. Congratulations to Jana and family. Four months to go but there is a huge bright light at the end of the tunnel. What a wonderful Thanksgiving this will be.
Many prayers and blessing are still be sent your way.
Peace and God Bless,
CJB |
Eileen11
| | Posted on Tuesday, October 31, 2006 - 01:23 am: | |
Oh My God...I have goosebumps reading this fantastic news! I can't wait till the morning so I can tell Tony and the girls....Happy, Happy Day! Yes...you can do the next four months. LOL!! Just keep saying, "Cancer free, Cancer free!!" Your older girls must be so excited!
Eileen and Tony |
Lil_caribe
| | Posted on Tuesday, October 31, 2006 - 09:01 am: | |
Have just begun to read about this family's journey. What an inspiration! As an RN, I appreciated the patient/family perspective. It is always enriching. I am an OR nurse have done a few of the spinal chemo injections. I will say a little extra prayer for these patients from now on. Knowing how sick they get afterward and hearing how that impacts them and their loved ones, puts a face on a "symptom/side affect"
As a mother and a grandmother it has reminded me to thank God for every healthy day. As a human being I am awed at the outpouring of love and support from people who have never met this amazing young lady.
Well here is one more person sending out good thoughts and prayers for Jana and her entire family.
God bless |
Razzldazzl
| | Posted on Tuesday, October 31, 2006 - 07:22 am: | |
What awesome news to read 'Cancer Free' in your latest post. This absolutely makes my morning! Ahhh, the power of prayer and positive thinking. God is so good. May the Lord bless Jana and her family(including dear Maddie!) as you all support each other through this last 4 months of treatment. |
Cmweinman
| | Posted on Tuesday, October 31, 2006 - 07:22 am: | |
That is such WONDERFUL news! I check every morning on her recovery and this is a fantastic way to start the day! I am so happy for all of you. Keep believing!!!!! |
Rls
| | Posted on Tuesday, October 31, 2006 - 09:28 pm: | |
Once again, Jana is back at the fight with strength, courage, and grace.
Jana had to be in the OR early this morning for a spinal chemo injection. She did fine and slept through pre and post-op. She had more nasty IV chemo today. They have been giving her stomach medicines round the clock and some morphine for pain this afternoon. She has slept almost all day except for about 45 minutes when she decided to join the trick or treat parade through the halls of the hospital. (what a choice for her costume...all her idea!)
Sleep is good...pray for Jana's comfort and rest.
Happy Halloween from Jana!
 |
Tommywommy
| | Posted on Wednesday, November 01, 2006 - 05:49 am: | |
We are so thrilled with the great news and we are still praying for Jana as she continues her progress forward..We love her costume. |
Redsoxnation
| | Posted on Tuesday, October 31, 2006 - 08:17 pm: | |
That is the best news I have heard in a long time! I am so happy for all of you. Now you can go on a live a wonderful life with your lovely family. You have shown us through your strength what are the most important things in life. Thank you for that! |
Buckeyegirl
| | Posted on Tuesday, October 31, 2006 - 11:33 pm: | |
Happy Halloween to you Jana! Looking for you to be out trick or treating next year.
Many prayers,
Julie |
Trishfrommich
| | Posted on Tuesday, October 31, 2006 - 08:25 pm: | |
Go Jana, Go! We were so glad to hear the latest GOOD NEWS, and are continuing to hope for the best possible outcome for you and your family.....now it's time to get to the business of recovering, so you can get back to the job of being a normal "kid." Much love from Michigan. :-) |
Miakev
| | Posted on Wednesday, November 01, 2006 - 08:51 pm: | |
Yessssssss! I am so happy for your whole family!
I have been away from the board for awhile, but have had Jana in my thoughts and prayers daily.
What wonderful news. The Halloween costume was cute! Feb will be here before you know it!
Keep stong! Good thoughts and lots more prayers being sent your way.
mia |
Rls
| | Posted on Thursday, November 02, 2006 - 02:50 pm: | |
Hello!
Jana is sleeping about 23 out of the 24 hours these days. Sleep is good...as she says, "If I am sleeping, I don't hurt and I don't throw up." They are keeping medicines in her that help with her stomach and also help make her sleep.
Yesterday, we noticed that her eyelashes are falling out. This morning, she woke up with swollen eyes and swollen lips. These crazy medicines...just never know what is going to happen.
During the past rounds, Jana's white count has always dropped drastically as a result of the chemo. This is "normal" and expected. In order to boost her white count, she has had to take shots. However, during this round, she will not be taking shots and her body will have to recover on its own. This is good news/bad news. While Jana is excited because she hates the shots, it will take longer for her blood to recover from the chemo so her white count will be very low for longer. That means she will probably spend a couple of weeks being at risk for infection and fever; and having to stay somewhat isolated to avoid exposure to germs. It won't interfere with her ability to go home when she is feeling well enough, unless she runs a fever.
Thanks for your continued thoughts and prayers!! |
Millyj
| | Posted on Friday, November 03, 2006 - 11:10 am: | |
I haven't posted here in a while but I wanted to say thank you for keeping all of the Couples family posted on Jana's recovery. I pray that God continues to bless this little girl and I KNOW you will look back on all of this and you will know how awesome God is. Jana is and will be a living testimony to help others.
Many blessings to you |
Melanie
| | Posted on Friday, November 03, 2006 - 11:26 am: | |
So great to see this news when I checked the site this morning - good 4 u Jana! U fought it and u won :-) Just a couple more months of this nasty treatment and then ur done - hang in there!
Thinking of u in Southern California :-) |
Illinoiscouple
| | Posted on Friday, November 03, 2006 - 01:09 pm: | |
RIs ...I am so happy that all those tests went well. Even though these maintenence rounds will also be rough there is light at the end of the tunnel. GO JANA GO!!!!!! You are doing great!!!! Now that mountain that seemed so big only just awhile ago starts to look smaller and will from here on out!!!!! KEEP the faith and my 4 boys say a special prayer for you every night!!!! Keep up the Good fight Jana!! Our thoughts and prayers are with you!! Angie from Illinois!! |
Rls
| | Posted on Friday, November 03, 2006 - 05:55 pm: | |
Hi All,
Jana is feeling a little down this afternoon. The mouth sores are back and they are pretty miserable. We thought maybe we would luck out this time. They are giving her a variety of things to help with the sores, her upset stomach, and overall pain, but she just feels frustrated.
They had talked about letting her go home this weekend, but she is relying on meds too much to go home, I think. I would rather she be feeling good, rather than be miserable when she's at home--that makes me feel really bad if I can't help her.
The good news of her test results has helped boost us for this round, but in another way, it makes it somewhat difficult to go on. Jana wants to just feel better and be done. Obviously, we all want that for her.
Thanks for continuing to think of her. We all appreciate your support, your cheering, and your prayers. We can do this, we just need to keep up the stamina and the faith.
Many thanks~Lisa |
Katjim
| | Posted on Friday, November 03, 2006 - 09:13 pm: | |
What a special family you are. Thanks so much for taking time out of your busy day to update the MB. Jana, you are surely a courageous girl, and I admire you for your strength during this roller coaster of a journey. There are twists and turns, anticipation and fear, but the end is now in sight. Please know that I continue to pray for your healing.
Kathy from NC |
Vickyj
| | Posted on Saturday, November 04, 2006 - 05:41 pm: | |
Thanks for the update. We continue sending postive thoughts and prayers your way. |
Jerseygirl032
| | Posted on Saturday, November 04, 2006 - 08:35 pm: | |
RLS,
Please know that you, Jana, and your entire family are still always in the thoughts and prayers of my family - and now co-workers!
God bless you,
Sandra |
Mobob
| | Posted on Sunday, November 05, 2006 - 09:55 am: | |
Lisa, Keep plugging along. Put one foot in front of the other. Try not to get discouraged. There is light at the end of the tunnel. I speak from experience. You have a tough family. It will all be good in the end. We continue to pray for you.
Maureen |
Miakev
| | Posted on Sunday, November 05, 2006 - 03:51 pm: | |
Lisa & Jana
Hang in there, We are all still praying for you.
Soon, things will start getting better and better, and this will be a bad memory...
Thank you for keeping us posted, I look for your posts every time I open the message board.
mia |
Tommywommy
| | Posted on Monday, November 06, 2006 - 10:46 am: | |
Rls..Thanks for the updates..We hope Jana(Our Couples Girl) will soon be able to spend more time at home..Our thoughts and prayers are with all of you. |
Rls
| | Posted on Monday, November 06, 2006 - 10:37 am: | |
Hello Everyone,
I think Jana will be in the hospital for a little while longer. Her mouth sores are causing a lot of pain. The Dr. is offering a pain pump for steady pain relief--we'll see how the day goes. Her face is so swollen and her ears hurt from the swelling. She is still trying to pass the time with new things to do. It gets difficult to find new "bed things" for entertainment.
They moved her to a different hospital room. She is not in her "old room" but right beside it. She is happier to be back in the section where she is most comfortable. It is right next to the nurse's desk and more isolated which feels better to me for germ control.
Her positive attitude is back and she has resigned herself to staying here for the pain control that she knows they can provide. Keep praying and sending positive thoughts.
Many thanks~Lisa |
Travibabiesgirl
| | Posted on Monday, November 06, 2006 - 02:04 pm: | |
Lisa,
this has to be so hard for you both. To be so close to being done yet having to endure so much to get there. I am glad to hear that her positive attitude is back. I will keep Jana in my thoughts and prayers. Hang in there. |
Vickyj
| | Posted on Monday, November 06, 2006 - 02:45 pm: | |
Check "michael's" or a similar craft store for Hama Peraler beads. They are little beads that put on a tray to make a design. When the deisgn is created use an iron to melt the beads,pull off the tray and hang for a decoration. |
Artfrancine
| | Posted on Monday, November 06, 2006 - 06:58 pm: | |
Lisa, Sending good vibes & positive thoughts to Jana and your family. Hang in there. Prayers & Well Wishes, Art & Francine |
Eileen11
| | Posted on Tuesday, November 07, 2006 - 02:04 am: | |
She's so brave and also so young. I can't imagine having to keep a pre-teen busy for hours! TV gets old, books get old, crafts get old, etc. Does Jana like computer games? If you go to yahoo.com and then to games, there are many free and fun online games to play. These games are played alone so you basically have to beat your own score and are not played with others, so there's no problem with identity. The games can be a great time killer! |
Texasdee
| | Posted on Tuesday, November 07, 2006 - 07:45 am: | |
Hi Lisa,
I am glad that the news has been so good about Jana's progress, but also know that the treatment that continues does not give you or Jana any slack just because she is getting well...Seems to me they should have a better, easier treatment for the second half for people who are getting well...
Does Jana play computer games...I know some really fun ones that pass the time if she is interested. Also, I have an idea about her school work and will email you..Hang in there, you are all doing GREAT!!!! |
Rls
| | Posted on Tuesday, November 07, 2006 - 10:38 pm: | |
Hello!
Thanks for the encouragement. I've sure been needing it.
Jana has been hooked up to the pain pump since Monday and today (Tuesday)~they increased it to make her even more comfortable. She gets a steady dose of morphine and a button to push for a supplemental dose as needed. The pain pump has been a real relief to her and although it doesn't make the mouth/throat sores go away, it does help ease the pain a bit. Our smilin' and chatty Jana has returned to us with a bit of pain relief help!
Her white blood count has bottomed out, so we know the sores won't go away easily any time soon. I don't know when we will get her home. It depends on when the sores get tolerable enough that we can make her comfortable with pain meds at home.
Thanks for the suggestions of things to do...we are working on getting some new things that help pass the time. We have completed some crafts, but anything that requires much concentration gets difficult with the meds she is on, so we are trying for "mindless games".
Jana is such a trooper, I can hardly believe it. We thought this round would be a quick in and out and now we are here for who knows how long. She has accepted it and is making the best of it.
Thanks for your support, thoughts, and prayers. |
Susiet
| | Posted on Wednesday, November 08, 2006 - 06:53 am: | |
Lisa: When my son went thru this, he used to tell us that he felt that it was harder on us than it was on him. I don't know about that but I am praying for all of you. I realize how hard it is for you as parents to watch your beautiful little girl suffer like she is but before you know it, she will be back to good health and this will be behind her. Jana and her wonderful attitude is your strength right now and we are all keeping you in our thoughts and prayers. Wish we were closer so we could visit and maybe help with some of the burden. Bless your family at this difficult time. Sue |
Jerseygirl032
| | Posted on Wednesday, November 08, 2006 - 08:26 am: | |
Lisa,
Not only is your little Jana a trooper - I think you are too!
Well, we know where she gets it from!
You are an incredible and strong woman!
Sandra |
Backdoc2b
| | Posted on Wednesday, November 08, 2006 - 09:42 am: | |
Prayers and good thoughts from Iowa.
How a bout Pass the Pigs? A favorite on here. It is mindless and would give both of you something to do. You can play online at http://www.pugetsoundwa.net/playland/pigs.html OR you can buy it at Target for like 10 bucks. |
Katjim
| | Posted on Wednesday, November 08, 2006 - 03:51 pm: | |
My nephew is also going through treatments. He's made a bead necklace. Blue beads for bone marrow, red for blood work, purple for chemo, black for x-rays, pink for surgeries, etc. He's assigned a color for just about everything. He enjoys showing it off, and it's a reminder to us of all he's been through. Maybe Jana would like to do something similar. It's given him something to do, and he's rearranged it several times. As you and Jana can imagine, it's quite a necklace! I'm continuing to pray for peace, strength, patience and healing.
Kathy |
Rls
| | Posted on Thursday, November 09, 2006 - 02:28 pm: | |
You all have been so generous with your prayers, but Jana is needing a little extra these days. Her mouth sores have moved into her throat and esophagus and she is simply miserable. It has also triggered some nerve pain so swallowing, moving, talking all hurt a lot.
The pain pump was controlling the pain until Wednesday, then they increased her morphine dosage last night (Wednesday) and today they changed it to a new kind of pain medicine which may help with the throat and nerve pain. They are also giving her some medicine to help her relax and cope with the pain. The inflammation from the throat sores could get worse before it gets better. It is a wait and see situation.
She is discouraged and frustrated. I am having a hard time with it because I feel so helpless right now. I just wish I had the magic cure.
Please pray for the medicines to ease her pain and for the sores and inflammation to improve quickly. Many thanks~Lisa
p.s. Backdoc2b--We started playing Pass the Pigs the other night--oh my gosh, it is addicting and fun! |
Jerseygirl032
| | Posted on Thursday, November 09, 2006 - 09:01 pm: | |
Lisa -
You are all still in my prayers...
May God comfort Jana with her pain and bring her peace - and strength and hope for your family too.
-Sandra |
Susiet
| | Posted on Friday, November 10, 2006 - 08:35 am: | |
Lisa: I cannot express my feelings for what you are going through. Of course extra prayers are being said for Jana. I am sorry we can't do more. May God be with you. Sue |
Rae_dave
| | Posted on Friday, November 10, 2006 - 09:12 am: | |
Another difficult step along Jana's journey to health and wholeness. My heart aches to hear of her pain and uncomfortableness. BUT---her attitude and yours are fighting it!! Sending prayers your way. |
Razzldazzl
| | Posted on Friday, November 10, 2006 - 12:20 pm: | |
Extra prayers for speedy healing and strength are yours. |
Gregswife
| | Posted on Friday, November 10, 2006 - 01:04 pm: | |
So sad to hear of Jana's pain right now. I think of her and your family daily. You are a very strong woman with a very strong and supportive family (and Couples family!) We will continue our healing thoughts for Jana as these days get a bit more difficult for her. No doubt..she'll pull through |
Miakev
| | Posted on Friday, November 10, 2006 - 02:01 pm: | |
Lisa and Jana
I am so sorry that things seem to get worse, I am praying that the new pain meds work for you.
There is a light at the end of this tunnel. Hang in there! Sending Love and Support! Prayers too.
The way you are all handling this reminds us all that as rotten as things can get we need to handle them with strength and grace.
mia |
Rls
| | Posted on Friday, November 10, 2006 - 05:22 pm: | |
What a day it has been. Jana has been running a fever since 1:00am this morning (Friday). They think it is the body's reaction to the inflammation and chaos in her body right now. She is topping out at 103.4 this evening. She has been miserable. They have adjusted her meds several times today and finally increased her dosage of pain meds and increased the dosage and frequency of her Ativan which helps her be less anxious and helps her sleep. They are giving her precautionary antibiotics and doing blood cultures. Hopefully, it is just a body reaction because her white count is -.5 so her body has no ability to fight off any type of infection right now. Mercifully, she is sleeping right now.
She said today after reporting a 5 out of 5 on the pain scale, "I am tired of hurting, I am tired of being brave. I want to just cry and take pain medicines and not be brave any more." I assured her that anyone would cry if they were in her situation and accepting the relief of pain meds did not mean she wasn't brave. I told her there were lots of people helping her cry and I know you all are some of them.
Pray, send positive thoughts, do whatever you believe in. I feel so helpless and discouraged right now!! ~Lisa |
Db4usa
| | Posted on Friday, November 10, 2006 - 05:27 pm: | |
Dear God,
We, Jana's whole MB family, come to you humbly and beg for you ease her pain and heal her body. Please give her your strength to get through the rest of her treatments.
This little gal has so much spunk and so much personality. We know that you can use her in this old world to bring so much joy to so many people. I pray that she feels your love and warmth and that she knows that you have a very special plan for her life.
Please give Lisa, her husband and the girls the wisdom and strength to help carry her through this horrible time. Draw this family together and to You. These things we pray in your name,
Amen. |
Fairydolph
| | Posted on Friday, November 10, 2006 - 11:20 pm: | |
Lisa, I am so sorry to hear Jana is not having a good day. We will put it out to the Universe that she will pick up again very quickly.
Our hearts go out to all of you. Let her know she has many shoulders to cry on, even if it's not physically.
Thank you for the update. Try and get some rest and find strength again. Tomorrow is another day and I hope it is a better one for all of you, but especially for poor Jana who has gone through what no child should ever have to go through. |
Tommywommy
| | Posted on Saturday, November 11, 2006 - 06:09 am: | |
Lisa...Tell Jana that WE all are crying also..Tell her everything will be better soon and one day she must decide which Couples resort she wishes to visit.
Darling Jana..Hang in there,accept the pain medicines and a brighter day is coming.
Db4usa..Thanks for such a sweet and needed prayer.
We love you Jana..Our Couples Girl |
1georgia
| | Posted on Saturday, November 11, 2006 - 09:25 am: | |
Lisa: My heart is breaking for Jana and for you. Please tell Jana that extra prayers are coming her way for relief of her pain and discomfort. Please tell her never to even think that she is not courageous and brave--I think she is one of the bravest people I have "known", exceeded only by the bravery of her mother.
So glad she liked the kitty magnet. Wish I could do more for her. Tell her to remeber that I think she is "AWESOME"!
Hugs to you both--Kathy |
Lisaroy
| | Posted on Saturday, November 11, 2006 - 11:16 am: | |
Lisa, sending positive thoughts and good wishes to Jana and your family during this tough time. Hopefully today will be a better day.Thinking of you all. |
Cjb0715
| | Posted on Saturday, November 11, 2006 - 08:47 am: | |
Dear Lisa,
I read the despair in your words. Please tell our Jana that she is very brave. She is brave to face this dreaded disease every day. She is brave to put on a happy face each day. And she needs to be brave and let the pain meds do the work for her.
I hope and prayer that she will be through all of this soon. I pray for you and your family. It is so difficult to watch a loved one in pain and feel like there is nothing you can do. Db4usa has given us all a prayer that we can repeat for Jana and her family, I know our 'higher power' is listening and this will get Jana through this soon.
I'm sending all my love and prayers to Jana and family. |
Illinoiscouple
| | Posted on Saturday, November 11, 2006 - 01:57 pm: | |
Lisa..I am so sorry to hear Jana is struggling so much!! Please tell her that she is braver then most adults are. Those pain meds are there and if that is what it takes to get through this then have at it! As for Crying that is a good healer and there is nothing at all wrong with that. Sometimes crying just makes you feel better! You will get alot of extra prayers from Illinois and we love you Jana. Lisa keep the faith....you are great parents that is so important for Jana. God bless you!! Angie from Illinois! |
Georgejulie
| | Posted on Sunday, November 12, 2006 - 04:08 am: | |
Lisa,
My heart breaks to hear of such discouragment in your young fighters heart. Remember that tomorrow is a new day. Extra prayers are going up from Kansas tonight. Please tell Jana I have never met a braver young lady than her. God bless Jana, you and your family. |
Lucy01
| | Posted on Saturday, November 11, 2006 - 11:00 pm: | |
Lisa and Jana,
Everytime you cry, the message board cries. Please don't feel that you have to brave all the time.Even when Jesus was on the cross he cried out.Shalom to you Lisa and Jana.I continue to keep you in my prayers. |
Fraserlynn
| | Posted on Saturday, November 11, 2006 - 05:54 pm: | |
I have followed this thread through the months, but have never felt worthy enough to contribute to the massive warmth and love I have read.
Although we have never met, Jana, through this thread, has aleady been a huge inspiration in my life. Without knowing it she has made me treasure those that I love a bit more, hug my children a bit harder, share my feelings a bit more readily and show more patience to others around me.
That is the sort of inspiration that only comes from a really special few, a brave few, a couragous few.
I am in awe of you all, I hope and pray that Jana soon makes the speedy recovery she deserves.
It also makes me want to do something, I am sure that with the collected intellegence and imagination of everyone who visits this message board we could find a way to raise money to support all the children who are facing what Jana is. |
Miakev
| | Posted on Saturday, November 11, 2006 - 08:59 pm: | |
Lisa and Jana,
I am sitting here with tears streaming down my face... I don't know what to say, but hold on, it will get better... Tears are healing too, so if you have to, need to, or just want to cry. you just do it!
mia |
Susiet
| | Posted on Sunday, November 12, 2006 - 07:52 am: | |
Lisa: I just wish and pray for you all that God makes this a little easier on you. Like Mia in the last post says, CRY---it will help a little. Jana needs to cry too. Love and prayers and tears are going your way as always, Sue |
Smilemon
| | Posted on Sunday, November 12, 2006 - 03:36 pm: | |
Jana, please go ahead and cry, you don't always have to be brave. I hope and pray that today is a better day for you. Love, Hugs and prayers still continue to come your way everyday. I just know you have many "Angels" watching over you! |
Scottdenise
| | Posted on Sunday, November 12, 2006 - 05:18 pm: | |
Jana --- you ARE the bravest little thing I know and you do whatever you need to, to stay that way. The medicine is there to help you rest for getting stronger. Lisa, stay strong we are all here with you. Never loose the faith, this will be beaten and Jana will be the winner! Sending extra sepcial love and prayers your way. |
Travibabiesgirl
| | Posted on Monday, November 13, 2006 - 08:04 am: | |
Oh man poor Jana. It brings me to tears to read your post. I hate to hear she is struggling so much. We are all crying with her and wishing we could wrap her up in a big hug. My prayers are with you. |
Rls
| | Posted on Monday, November 13, 2006 - 10:17 am: | |
Monday-A fresh start to the week. The Dr. has adjusted Jana's pain medicines several times over the weekend and yesterday she got to a comfortable level. It was so nice to see less stress in her face and see her resting more comfortably.
Jana's college sister, Holly, came up on Saturday. Wow, what a boost for all. It was great to see her and she and Jana had quite a cry-fest which helped both of them. They miss each other dearly. Emily is sick right now, and has been off and on for a couple of weeks. So, Russ is taking her to the Dr. today. I am trying not to get stressed about that.
Jana's fevers have continued to rise and fall and we were disappointed that yesterday she spiked again with 103.6. So, the third set of blood cultures and antibiotics. The Dr. still thinks the fevers are due to the stress of her body, not infection; but we can't be sure and they have to be cautious.
Now that she is in less pain, she feels more hopeful and able to cope. She is drinking more and moving around more easily. She still feels very bad when her body is burning up with fever but her throat seems more tolerable. She did manage a shower this morning and she is back in bed ready for a nap. Her hemoglobin is very low today, so she is going to get blood.
A few smiles...a few slurred conversations...a few hugs. For now, I am cautiously hopeful that we are approaching the bend in the road on this leg of our crazy chemo journey.
Many thanks for your extra prayers, encouragement, and love. How did we get so lucky to have so many wonderful people supporting us in our time of need? This will be an extra special time of thanksgiving for us. We have so much to be thankful for. ~Lisa |
Cathyjoe
| | Posted on Monday, November 13, 2006 - 11:42 am: | |
We will say extra prayers for Jana and for you Lisa as well.
I am so sorry to hear Jana is struggling. We send her big hugs and lots of love and hope she is doing better.
Cathy & Joe |
Razzldazzl
| | Posted on Monday, November 13, 2006 - 12:34 pm: | |
My heart aches for you all. This last 'round' has been pure hell on earth for Jana as well as her family. Prayers for healing and a sense of peace as Jana copes and transitions through this 'round' are of course, hers and yours. God Bless. |
Cjb0715
| | Posted on Monday, November 13, 2006 - 12:18 pm: | |
Continuing with many prayers for our Jana.
I'm not a good sleeper and find myself waking at night and saying even more prayers.
This little girl will get better soon, I just know it. Keep up the fight and get strong quickly.
Prayers,hugs and love to all,
Cheryl |
Cjb0715
| | Posted on Tuesday, November 14, 2006 - 01:31 pm: | |
back to the top please for more prayers |
Rls
| | Posted on Tuesday, November 14, 2006 - 02:18 pm: | |
Hello my MB friends,
Tuesday-Jana continues with high fevers and 103.6 being the highest yet. Yesterday, she started with severe stomach cramps and diarrhea and today she tested positive for a bacterial infection called C.diff. This common infection develops in people with low immune systems (Jana's low white count from chemo) and those taking multiple antibiotics--which changes the insides of the intestines by destroying the good bacteria and allows the bad bacteria to take over your intestines. (Your biology lesson for today!)
So, they are treating it with the right antibiotics and we are hoping for improvement soon. Her throat seems to be better and they are trying to reduce her pain pump dosage to see if she can tolerate that. She is feeling discouraged.
In addition, a very upsetting thing happened today and Jana is very distraught and wants your help. Jana would like all of you to say an extra prayer for Tiffany. Jana met Tiff when she first came to the hospital and they have spent time together playing, talking, and hanging out. Fellow cancer kids. Tiff is very sick right now and went to intensive care. Jana knows that she has a lot of people praying for her, but she asks that you share your prayers with Tiffany today. |
Tommywommy
| | Posted on Tuesday, November 14, 2006 - 04:10 pm: | |
Our girl Jana has a little friend named Tiffany she met in the hospital..They have spent time together and this was great for the two of them.
Jana wants us to pray for Tiffany.Tiffany is very sick and has been put into intensive care..
Let us all continue to pray for Jana and Tiffany.
Many thanks to Randymon and Couples for allowing this thread...We are all indeed a family....A proud Couples family. |
Vickyj
| | Posted on Tuesday, November 14, 2006 - 06:37 pm: | |
Prayers continue your way. How thoughtful of Jana to be concerned and wish for prayers for another child when she is so ill herself. You have a wonderful child. |
Smilemon
| | Posted on Tuesday, November 14, 2006 - 09:31 pm: | |
More prayers coming your way Jana, and prayers for your friend Tiffany as well. May God Bless you Both. A quote from one of my favorite poems: Footprints - "My precious, precious child, I Love You and I would never leave you. During your times of trial and suffering, when you only saw one set of footprints, it was then that I carried you." Believe that God is carrying you now. |
Miakev
| | Posted on Tuesday, November 14, 2006 - 10:16 pm: | |
Jana, WE will continue to pray for you and now also for your friend Tiffany. With the new meds, we are all praying you are feeling better..
Hang in there kiddo!
mia |
Eileen11
| | Posted on Tuesday, November 14, 2006 - 11:35 pm: | |
Jana and Lisa, our prayers are with both of you and now, also with Tiffany. Jana, you are not only the bravest girl, but also the most giving and caring girl!
Eileen |
Backdoc2b
| | Posted on Tuesday, November 14, 2006 - 10:42 pm: | |
Lisa and Jana~
Hang in there. I will add Tiffany to my prayer list. I hope that you both get better soon. It takes a strong person to think of someone else and I commend you for that.
Prayers from Iowa
C |
Tarheel_fan
| | Posted on Wednesday, November 15, 2006 - 08:47 am: | |
prayers and love to you all and tiffany too!! |
Jonnlis
| | Posted on Wednesday, November 15, 2006 - 08:08 am: | |
Wow. I am awed and humbled at the compassion and generosity shown here. I know that you tend to bond with people who are in similar situations, but to ask for something so important for someone else is remarkable. Please let Tiffany's family know that they have support here that they'd never imagined. And Jana, you are a special girl, hang in there. |
Cmweinman
| | Posted on Wednesday, November 15, 2006 - 11:50 am: | |
What a generous spirit Jana has to "share" her prayers with Tiffany! Luckily, prayers are limitless and there are plenty for both of them. May God Bless you all! |
Razzldazzl
| | Posted on Wednesday, November 15, 2006 - 12:31 pm: | |
How humbling to read and 'feel' Jana's heartfelt concerns about a friend in need. Jana is indeed a special person with a wonderful spirit and a kind heart. May God put his healing hands on both Jana and Tiffany as they continue their courageous battle... God Bless. |
Lisaroy
| | Posted on Wednesday, November 15, 2006 - 02:29 pm: | |
Lisa you and your husband have raised such a wonderful family. For Jana to be thinking of someone else when she is feeling so bad is amazing. She is such a compasionate, mature and caring young lady. Our thoughts and prayers go out to all of you and to Tiffany and her family. |
Miakev
| | Posted on Thursday, November 16, 2006 - 10:42 am: | |
This thread is too far down, bumping you back up!
Still sending prayers and good thoughts for both familys! |
Mobob
| | Posted on Thursday, November 16, 2006 - 11:13 am: | |
Lots of prayers continue from Monroe NY. We will now include Tiffany. |
R_n_b
| | Posted on Thursday, November 16, 2006 - 02:20 pm: | |
Rls--Don't know what happened, I posted this last night and it disappeared into cyberspace. Anyway, I just wanted to tell you I had C. Difficile earlier this year. Do they have her on probiotics to put the good flora back into her system? Do they have her on Flagyl or Vancomycin to treat it? That stuff alone could make your sweetie weak. Please let me know if you need additional info, I have a couple of websites bookmarked, and I know a whole lot about it. Continued good thoughts to Jana and her friend Tiffany--Robin |
Fairydolph
| | Posted on Thursday, November 16, 2006 - 03:08 pm: | |
Jana, what a HUGE heart you have. We will send positive thoughts Tiffany's way, along with continuing to send them your way also.
Take care!!!! |
Texasdee
| | Posted on Thursday, November 16, 2006 - 03:24 pm: | |
Hi Lisa,
We are living in New Orleans for a while. When I am at home I had certain things to remind me of Jana to remind me to pray. Since my schedule is so different here, I picked a certain building that I would see when I walk my dog and every time I see it, it reminds me of you and your family..and I say a prayer. Well, I selected it it the daytime and the first night I was so excited to see that the front has some colorful strobe and it changes from yellow, to red, to purple all night long... I thought that was a good sign that Jana's building is so beautiful and colorful... I'll get the name of it when I go further into downtown so she can see how cool it is... I am sure it is somewhere on the net!!!Take care and of course we will add Tiffany to our list!!! |
Rls
| | Posted on Friday, November 17, 2006 - 11:47 am: | |
Friday--I think we are hearing the answer to our prayers!
Jana has stayed fever free for 24 hours now, her tests are showing no C. diff remaining so the medicines are working, and her blood counts are coming up. They are still concerned about her electrolytes which are out of whack because of the diarrhea.
They are trying today to see if she can go without intervention so they have disconnected her IV fluids, stopped the antibiotics, and are encouraging her to eat and drink.
Maybe, just maybe, if things go well, they may let her go home tomorrow which would be so exciting. Yesterday, we were thinking she would be lucky to be home by Thanksgiving, now maybe we'll have the week at home to be a family! She will start the next round on the Monday after Thanksgiving.
As Jana said last night, "We have so many things to be thankful for this Thanksgiving." And, she's so right. On the top of our thankful list will be all of you that are right by our sides as we travel through this journey. We feel your presence always through your prayers, messages, encouragement, and positive thoughts. Thank you, God, for blessing us with these wonderful friends. |
Cjb0715
| | Posted on Friday, November 17, 2006 - 12:36 pm: | |
Continuing to pray for Jana, Tiffany and families.
Haven't heard anything for a while, so I'm hoping no news is good news and that Jana is recovering from her fever and stomach problems.
I have felt the power of prayers from this board and I just know that Jana will receive the strength to continue her fight. She is such a brave young lady with a compassion for others that just astounds me. In her weakest moments she has the ability to think of others in need. I hope you all can feel the power and the love being sent your way.
Blessings,
Cheryl |
Cjb0715
| | Posted on Friday, November 17, 2006 - 01:44 pm: | |
That is just wonderful, fantastic news.
(I shouldn't read these posts at work, everyone wonders why I'm crying) happy tears, happy tears.
Congratulations on this moment. It seems like such a big event and you'll all be together for a few days before the next round.
God bless you and keep you safe.
Happy Thanksgiving |
Gregswife
| | Posted on Friday, November 17, 2006 - 02:10 pm: | |
Here's hoping for a week of family time for you Special thoughts for Jana's friend Tiffany too! |
Backdoc2b
| | Posted on Friday, November 17, 2006 - 01:34 pm: | |
Yay!! I'm so happy for you. I'm glad that things are on the rise for Jana and your family. What a wonderful thanksgiving it will be. She's right, there is truly a lot to be thankful for. |
Tommywommy
| | Posted on Friday, November 17, 2006 - 02:25 pm: | |
Lisa..We really enjoy the great news about "OUR" Couples Girl Jana..We are hoping she can get home and enjoy the weekend..We all are praying for Jana and Tiffany. |
Miakev
| | Posted on Friday, November 17, 2006 - 02:26 pm: | |
Lisa, I am so happy that things are looking up for Jana! You and your family will be with us also on Thanksgiving, in thought and prayers.
mia |
Illinoiscouple
| | Posted on Friday, November 17, 2006 - 03:12 pm: | |
Lisa and Jana..that is great news that you may get to go home tomorrow....Jana is so special and we will be saying an extra special prayer for her at the dinner table on Thanksgiving. Jana is one special little girl that has touched so many lives ...she is truely someone to be thankful for. Our thoughts and prayers will be with you through this holiday..!!Angie from Illinois! |
Texasdee
| | Posted on Friday, November 17, 2006 - 10:18 pm: | |
My family is so grateful that we have gotten to be a part of your miracle!!! I took Paul out to see "Jana's building" and he is going to take some pics and I will email them. I like it because after Katrina it reminds me that New Orleans is coming back and still has a lot of beauty. Have a great Thanksgiving and a wonderful time with your family. We will be thinking of you!!! |
Texasdee
| | Posted on Friday, November 17, 2006 - 10:18 pm: | |
My family is so grateful that we have gotten to be a part of your miracle!!! I took Paul out to see "Jana's building" and he is going to take some pics and I will email them. I like it because after Katrina it reminds me that New Orleans is coming back and still has a lot of beauty. Have a great Thanksgiving and a wonderful time with your family. We will be thinking of you!!! |
Cathyjoe
| | Posted on Saturday, November 18, 2006 - 09:15 am: | |
Wonderful news!!!!
Hope everything goes well.
We will be thinking as always of you guys |
Rls
| | Posted on Saturday, November 18, 2006 - 03:39 pm: | |
Hello!
Saturday--We are HOME!! No fever, blood counts is rising, she is feeling pretty good. Her potassium is low but they will just monitor it for now.
She is weak and tired and has lost weight. But, she is so excited to be home laying on the couch! (with the fur-ball of course!) We all need to rest up--it has been an exhausting 3 weeks....physically and emotionally.
I talked with our other daughters and they are thrilled!! Holly will be home Monday night and Emily is off most of next week also. I can hardly imagine having family time for 6 days in a row! Everyone has put in their meal requests and I have been to the grocery and home again today so we are set for the week. Russ and I are relaxing as well...enjoying a cold adult beverage! Another thing we miss sometimes!
Jana goes back to the hospital on Monday for a blood test to monitor the potassium but then hopefully home the rest of the week. We are keeping her out of crowds until we start back on Monday, November 27th. Her white count is still not terrific and we can't risk her getting sick when she is still so weak. We want to start the next round on time so she is feeling great for Christmas.
By the way, thanks for your continued prayers for Tiffany. Jana and I saw her briefly Friday night and she seems very sick. Unfortunately, because of her personal circumstances, we aren’t able to find out information from her family and of course the hospital personnel cannot disclose information. We just hope and pray that she will continue to improve and return to the ornery Tiff we know and care about.
A couple of pictures of Jana...at her worst last weekend. Still trying to smile... Thank God she is doing better!
 |
Lucy01
| | Posted on Saturday, November 18, 2006 - 06:55 pm: | |
Lisa and Jana,
I thank you for including Tiffany in your prayer requests.I continue to keep you and Tiffany in my prayers. It is my hope that all will have a peaceful, pain free Thanksgiving. Much love from Georgia!
Angela |
Db4usa
| | Posted on Saturday, November 18, 2006 - 06:14 pm: | |
Praise God! Happy Thanksgiving. |
Travibabiesgirl
| | Posted on Sunday, November 19, 2006 - 11:37 am: | |
Glad to hear that Jana is feeling a little better. She looks so tired in the pictures and yet still manages a smile. She is such an amazing girl. I hope you all have a great week at home and enjoy Thanksgiving together. My thoughts and prayers continue for you and your family including Tiffany. |
Miakev
| | Posted on Monday, November 20, 2006 - 11:18 am: | |
Sending positive thoughts and wishes for a Peaceful Thanksgiving, Renewed strength, and family time together..furball time too. |
Lisaroy
| | Posted on Monday, November 20, 2006 - 02:29 pm: | |
Wishing you all a very Happy Thanksgiving. It is wonderful that you are going to celebrate it together at home. Love to see thru it all that Jana is still smiling. Lisa |
Marine_biologist
| | Posted on Monday, November 20, 2006 - 03:51 pm: | |
Happy Thanksgiving. We Hope Jana has a Speedy Recovery,GOD Bless You. |
Rls
| | Posted on Monday, November 20, 2006 - 08:40 pm: | |
We are all home!! Jana's blood test went well today and her counts are coming up. She does not have to return until next Monday, November 27th when she will start the next chemo round.
Russ took Jana to the hospital today--the only time ever that I haven't been there. But, I decided that I had to do some Christmas shopping--might be my only chance.
The grandparents went to get Holly from college and Russ' dad didn't feel well on the drive home. By the time they got to the grandparent's house, Holly had to call the rescue squad for him! They think he had a slight stroke. Russ is at the hospital right now with his mom. We do not need this extra stress right now as you can imagine. We need sleep and family together time. Unfortunately, Russ' mom does not drive and that makes it difficult.
I am asking once again for extra prayers, because Jana LOVES, LOVES, LOVES her PaPa. He and Jana are very close and they have a special bond. We think he will be OK, but of course it's a worry for us all. We are trying to be very positive with Jana because she needs to be upbeat right now to rest and heal.
Thank you, our friends, because I know we can depend on you for your support. Much love and thankful thoughts for all of you~Lisa |
Tommywommy
| | Posted on Tuesday, November 21, 2006 - 06:10 am: | |
Lisa..We are still praying.We will say additional prayers for Jana's PaPa and her friend Tiffany..We are so very proud of Jana.
Try to have a wonderful Thanksgiving. |
Travibabiesgirl
| | Posted on Tuesday, November 21, 2006 - 07:23 am: | |
Lisa,
Sorry to hear about your father-in-law. Will keep him in our prayers as well. In our family bad things happen in threes maybe this is the third and final bad thing and things should start looking really bright soon. I hope that you all can get in some relaxation and family time this week. Hopefully papa will get to come home in time for Thanksgiving. Will pray for that and so much more. God bless you and your family. |
Rae_dave
| | Posted on Tuesday, November 21, 2006 - 08:57 am: | |
Oh dear ones, amidst another stressful episode, you have taken the right steps in asking for support from your friends on this MB. We are here for you! I'm sure, if it were possible to be there physically to help out, we would be there!! So, remember to keep asking, praying and RESTING whenever you can. Are there other family members who could help with the grandpa and grandma?
"Lord, please keep this family in the palm of your hand and get them through all the tough times. Give them a peaceful Thanksgiving so that all thanks and glory go to you. Master Healer, lay your hands on Jana, PaPa, Tiffany and all who suffer in any way, so that they may too be living proclamations of your love. In Jesus' name I pray." |
Razzldazzl
| | Posted on Tuesday, November 21, 2006 - 12:35 pm: | |
Thanksgiving blessings to you all. |
Susiet
| | Posted on Tuesday, November 21, 2006 - 02:56 pm: | |
OK, Lisa you got it! Geesh, what else can happen? All we can do is pray for all of you! Sue |
Buckeyegirl
| | Posted on Tuesday, November 21, 2006 - 08:26 pm: | |
Extra prayers it is. Jana is so brave. I pray for a very Happy Thanksgiving for you and all of us on the board. |
Eileen11
| | Posted on Wednesday, November 22, 2006 - 01:41 am: | |
Many extra prayers for your family this week. Let's all say a prayer that this family will have a happy, together Thanksgiving and that Lisa, Russ and Jana are well rested and revived for the next battle.
Maybe, also, a little prayer that Lisa was able to finish her Chrismas shopping in ONE DAY! She's so amazing....! |
Texasdee
| | Posted on Wednesday, November 22, 2006 - 02:08 am: | |
We are praying for you and your whole family.Keep us posted.
Paul and Dee |
Rls
| | Posted on Wednesday, November 22, 2006 - 09:09 am: | |
Hello all,
You all are amazing. You are on my list of "thankful things" this Thanksgiving. How did we get this lucky?
Wednesday Update on Papa: Jana's papa has a blockage in his corotid artery. They have to do surgery to remove the blockage. Russ is at the hospital right now trying to help his parents get things arranged. His dad will have to be transported to a hospital about 50 miles away and we are not sure when that will happen or when the surgery will occur. In the meantime, he is regaining some use of his hand, and his face and speech are improving. We are trying to arrange for Jana to visit him some time hopefully before he is transported farther away. Jana and her Papa have such a special attachment to each other that it will be hard for them, but I know Jana will feel better if she sees him before she returns to the hospital.
Jana, however, is doing terrific! She feels good and she is so excited to be home. She has no pain or fever, she is eating, and she is resting well. The girls have chosen to sleep together in the family room in the basement and I think they plan to do that every night. I can't describe my feelings when I see them all together. We have been blessed. We are eating family meals-each night it is a different child's request and it is terrific to see them around the table laughing and teasing each other.
We have Thanksgiving at my parents' tonight and only Holly, Emily, and I will go. Too many people (40-some) and too many germs. Christmas is so much more important to Jana so she is not upset to miss out. Tomorrow, we were supposed to get together with Russ' parents, so those plans will change. I'm thinking pizza and beer at home sounds good...
Keep praying. We are so grateful. |
Miakev
| | Posted on Wednesday, November 22, 2006 - 11:23 am: | |
Lisa,
God doesn't give us more than we can handle, although sometimes is seems like the hard, rotten, bad things will never let up, they will. This too will work out. You are a strong family. You will get thru this. We are all here with you, praying for peace, strength, and many blessings for your whole family!
mia |
Rls
| | Posted on Wednesday, November 22, 2006 - 09:33 am: | |
We are Thankful...
*for "the call" that led us to the Couples resort and this message board
*for the staff at the Couples resorts that have provided a magical haven for renewal, peace, and friendship which has helped build this network of wonderful people
*for this message board and for those who faithfully read the journal and who cheer and pray for every high point and low point with us
*for prayers (and the people that say them) that have brought good news, good health, and strength
*for medicines that cure and for medicines that make the effects of treatment more tolerable
*for messages and thoughts that have brightened our days and made us better able to endure and cope
*for Jana’s contagious smile and her strength and courage to keep fighting the fight
*for the wisdom, care, and support of the staff at the Hospital
*for the Ronald McDonald House
*for helping all of us to have a better appreciation for life and good health
For this and more, we thank you, dear Lord. Please bless all of our Couples friends. May they know how much they mean to us and how much we appreciate them.
Happy Thanksgiving to all.
Love, Russ, Lisa, Holly, Emily, and Jana |
Melmike
| | Posted on Wednesday, November 22, 2006 - 11:29 am: | |
Happy Thanksgiving Jana! I think a lot of people all over the world are going to be giving Thanks to you for all you have done for us message boarders. It is so easy to get caught up in the hussle bussel of this world to the point that we take advantage of life's little pleasures. You and your family have inspired us to remember what is important and hug those we love a little longer this holiday season! Keep fighting the good fight love! |
Jerseygirl032
| | Posted on Wednesday, November 22, 2006 - 03:30 pm: | |
Dear Lisa -
I cannot read your posts without crying. Your family is so amazing.
I hope that you all have the most beautiful Thanksgiving ever! You certainly deserve it.
May God continue to wrap His arms around you and surround you with His peace and love. |
Lucy01
| | Posted on Wednesday, November 22, 2006 - 06:59 pm: | |
Happy Thanksgiving All,
I am thankful for each of you. God Bless. |
Db4usa
| | Posted on Wednesday, November 22, 2006 - 09:24 pm: | |
RLS
I am so happy to be able to (kind of) know you and your precious family. Although I cannot imagine going through the things you are going through with your child, I do know about Chemo treatments, platelets, blood counts, good cells, bad cells, mouth sores and such. I watched helplessly as my father went through all of this time and time again back in 1984 - 1988. It has to be so much more difficult having to live through watching your own child suffering all of this.
I just wanted to share something with you. We lived, at the time in Southern MO. Dad was diagnosed with leukemia and was sent to Baptist Memorial Hospital in Memphis TN. We spent many, many months there. My oldest son, (23 now) and only son at that time, learned to walk in the hospital hallways. The oncology nurses had him (and dad) spoiled rotten in no time. We spent a couple of Christmases in that hospital. Actually, probably the first Christmas tree my son ever remembers is the Poinsettia Christmas tree in that hospital. It was beautiful. As a matter of fact, my mother still to this day receives a christmas card each year from one of his doctor's nurses at the time.
Anyway, back to my original thought that I wanted to share...My dad was the very first patient there to have his own platelets (sp?) frozen for later use on him when his got to low. It was all experimental back then. We donated plateletes for the first couple of years as at that earlier stage you only had to have the same letter type blood to be a match. He was O- and we wer O+. Later it had to be an O- doner. He had 8 sisters and one brother living. There was only one match. The funny thing was, it was the whiner of the family who was the match. This changed her in a good way. I guess she felt useful.
The doctors told us that soon hers wouldn't even work but that they wanted to start drawing his and freezing it for later use. It worked.
Treatments have come so far since then, thank God.
I am so happy that you are all on your way to good health and much happiness. Enjoy your Thanksgiving holiday and know that your whole family are in many many prayers.
Sorry to have rambled on.
June
theburtons@charter.net |
Cathyjoe
| | Posted on Wednesday, November 22, 2006 - 09:25 pm: | |
Glad to hear the girls are together. We hope you have a Blessed Thanksgiving and we will add Papa our prayers. Hopefully you can work it out so all of you can be together for Thanksgiving. |
Scottdenise
| | Posted on Thursday, November 23, 2006 - 09:16 am: | |
Russ, Lisa, Holly, Emily & Jana,
May you have a Blessed Thanksgiving - our continued prayers are with each of you. |
Gregswife
| | Posted on Friday, November 24, 2006 - 12:18 am: | |
Happy Thanksgiving to your family!!! I hope that you all had a fun day! I'm so happy to hear Jana has been pain free!! How wonderful for you to have all 3 girls home together. Thinking of your father-in-law during this very tough time as well.
~Sarah |
1georgia
| | Posted on Friday, November 24, 2006 - 10:08 am: | |
Lisa,
Continuing to pray for all of you. I am so glad Jana got to be home for Thanksgiving and that she is pain free and feeling better. What a blessing for you all to be together during this special family time. Prayers also go out for Tiffany and Jana's special Papa.
Hugs to you all--Kathy |
Rls
| | Posted on Friday, November 24, 2006 - 02:28 pm: | |
Hi Everyone,
Hope everyone had a nice Thanksgiving! It was non-traditional for us, but very nice. We had just our family for lunch and I cooked a modified Thanksgiving feast--it was so great to look around and see everyone at the table. My brother and his family came later. We had pizza, adult beverages , and played cards. The cousins are very close to each other, and Jana was thrilled. We had a great time. It felt like we were "normal" for a while.
My father-in-law came home from the hospital yesterday! We are very worried about that since the surgery date has not been established yet and he has not fully recovered from the stroke. But, Russ' brother is there now, so we are trying to let other people handle it because after Monday-we won't be able to. We are going to see him today so Jana is pleased about that.
We put up the Christmas tree today since we won't all be together again until the week before Christmas. It's a tradition that we do it all together. Jana was so excited--she loves Christmas.
Jana just feels great and is so happy to be home. What a blessing that we have had this opportunity to rest up and rejuvenate before the next round.
 |
Vickyj
| | Posted on Friday, November 24, 2006 - 05:57 pm: | |
Continued prayers and positive thoughts for your family. You are all real "troopers". |
Georgejulie
| | Posted on Friday, November 24, 2006 - 11:19 pm: | |
Lisa,
What a precious family. Thank you so much for sharing this ordeal with us and allowing us to get to know your family. Our prayers will continue for Jana, her papa and Tiff. I also pray for your other girls and you and your husband. You all are amazing people. |
Smilemon
| | Posted on Friday, November 24, 2006 - 10:01 pm: | |
Thanks for sharing your pictures. Everyone looks so Happy to be together and I am glad you had a good Holiday. Enjoy the rest of your weekend together, it will help you gather strength to go back for the next round. Our thoughts and prayers continue to be with you. |
Tommywommy
| | Posted on Saturday, November 25, 2006 - 11:15 am: | |
Lisa..We all appreciate the wonderful news on Jana and love the pictures of her family.A really beautiful LORD loving family.
Our prayers are still being prayed. |
Tarheel_fan
| | Posted on Saturday, November 25, 2006 - 09:01 pm: | |
Happy Holidays!! Sounds like life is good for you guys!! Praying for Papa to get better real soon...I understand that bond between a granddaughter and her "papa"!!!!!!!!!!!!!! Love, Jennifer |
Trish
| | Posted on Sunday, November 26, 2006 - 07:46 am: | |
Hey! Doesn't Jana look cool in her Jamaica shirt? They are all beautiful girls! So glad your holiday was happy. |
R_n_b
| | Posted on Sunday, November 26, 2006 - 03:03 pm: | |
Lisa--Glad the holidays were good for you. So sorry about Jana's Papa but he sounds like he is doing better. I'm glad the c. diff is better, also. Your girls are all beautiful. Where is the furry member of the family in the photo?--Robin |
Kc_2006
| | Posted on Monday, November 27, 2006 - 08:10 am: | |
Hang in there Jana, you're doing great! My mom just finished her Chemo treatments for Hodgkins Leukemia a few weeks ago and just before Thanksgiving her test results showed no signs of cancer
Your strength and courage is a blessing and has spread to us all! May God be with you and your family. |
Nharris4
| | Posted on Monday, November 27, 2006 - 09:03 am: | |
Happy Thanksgiving Lisa, Jana and family! I'm so thankful that you had the opportunity to spend your holiday together and that Jana is feeling so much better! How many more rounds of chemo do you have to go through until she is finished? You all are in my prayers, Papa and Tiffany too!
Matthew 11:28 - 30 is my rock in difficult times: "Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light."
My prayer is that soon all of this will be a distant memory for your family and everyone will be healthy and strong!
*HUG*
~Nikki |
Rls
| | Posted on Monday, November 27, 2006 - 09:01 pm: | |
Hello All,
We had just a wonderful week at home. What a blessing to have everyone together. It was so rejuvenating for us all.
Jana is back in her favorite original hospital room, ready for chemo Round 7 which has already begun. She got one IV chemo today and this round she has to get one medicine with a shot twice a day. She's not happy about that, but it's just the way it has to be. The Dr. is very optimistic that this round will be much easier. We are very hopeful.
Jana's Papa is doing about the same. We are anxious to hear from the surgeon that things are set up for him to remove the blockage in his corotid artery.
Jana's friend Tiffany is doing much better and we were so happy to see her when we returned. The girls hung out tonight and we laughed as they teased each other. It is my birthday today and I told them that if anyone had said to me last year that I would be spending my birthday sharing pizza with 2 bald girls, I would never have believed them! They both got a giggle out of that.
Trish-good catch on the shirt(see photo above, Jana in pink shirt from Jamaica!)...I didn't even think of that until you wrote it! That was brought home to her right before she went in the hospital...hard to believe that was only 4 months ago...seems like eons ago!
Many thanks for your support and prayers. ~Lisa |
Vickyj
| | Posted on Monday, November 27, 2006 - 09:31 pm: | |
Lisa---Happy birthday and best wishes to you and for Jana, Tiffany's and Papa's recovery. |
Cjb0715
| | Posted on Tuesday, November 28, 2006 - 06:06 am: | |
Happy Birthday Lisa!! Sounds like you're getting a pretty good gift, two balds girls feeling much better!! I know that no one would want to be in your shoes but I'm really glad to hear that Jana and Tiffany are improving.
Good luck with the next round of chemo Jana. Please know that you are in my prayers (and Tiff too). |
Miakev
| | Posted on Tuesday, November 28, 2006 - 05:34 pm: | |
Happy Belated Birthday Lisa!
I am catching up on your posts and am so happy that things are looking up, and that this round should be easier on Jana! I don't know much about the treatments, but from what I have picked up, you are on the down hill battle. Keep fighting, it will be all a memory soon...
Continued Prayers for all of you!
mia |
Rls
| | Posted on Tuesday, November 28, 2006 - 09:12 pm: | |
Hello from the hospital...
Today has been a yucky day for Jana--stomach pains and major nausea and feeling icky. She wants to either sleep or lay as still as possible to make it better. But, another day done and hopefully a restful night ahead of us.
The Dr. is optimistic that this hospital stay will be short. But, we can never plan on anything, so we just take it one day at a time. The only thing we CAN plan on is the support and prayers of wonderful people like you!
The good news is that Tiffany came to say goodbye because she is getting out of here for a few days. We are so happy for her!
My father-in-law will see the surgeon on Friday to hopefully set up his surgery soon. He is doing therapy at home and is getting a little bit stronger.
Many thanks for the wishes, thoughts, prayers, and cheering...I can hear you! |
Sunny_day
| | Posted on Tuesday, November 28, 2006 - 10:29 pm: | |
More belated Happy Birthday wishes! I'm sorry to hear Jana has had a rough day, but our prayers are with all of you that this round will go quickly and as smoothly as possible. You have amazing strength and have clearly passed it on to your equally-amazing daughter. Hang in there, Lisa & Jana! |
Tommywommy
| | Posted on Friday, December 01, 2006 - 05:35 am: | |
Lisa..We are very happy that both Jana and Tiffany are doing better.We will continue to pray for everyone.We hope Jana can be at home this weekend.
We also are praying for Jana's SPECIAL grandfather.
Lisa..Sorry we missed your birthday but we still want to wish you a belated Happy Birthday.
Get well soon Jana..Our Couples Girl |
Fairydolph
| | Posted on Friday, December 01, 2006 - 09:59 am: | |
Happy Belated Birthday Lisa!
Hope everyone continues to feel well and stays on the mend!!! |
Rls
| | Posted on Friday, December 01, 2006 - 10:47 am: | |
Friday-Jana is doing well. She still feels a little icky, but overall she is doing well since the IV chemo is done. Only one more chemo shot to go. She has been so brave getting those painful shots in her stomach.
They are talking about letting her go home tomorrow if everything is OK. She will continue to have frequent outpatient visits as her blood counts drop next week. Of course, fever will become the major concern. We are hopeful that she will stay fever-free and blood products can be given in outpatient clinic so we can enjoy the pre-holiday excitement at home! And even better-- be home for Christmas and to welcome in 2007.
Many thanks for your thoughts and prayers. ~Lisa |
Sporty883
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